Vision, Mission, Value

Vision

The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes.

Mission

The NFED will:

• Be the authoritative resource for information on the ectodermal dysplasia syndromes.
• Provide services that meet the physical, emotional, informational and social needs of affected individuals and their families, and that help them lead a more normal life.
• Support research on the ectodermal dysplasia syndromes.

Value

The NFED believes in:

• Public awareness to achieve worldwide recognition and understanding of the ectodermal dysplasia syndromes. 
• Being responsive to the needs of its families through a variety of programs.
• Support for research into the causes and treatment of the ectodermal dysplasia syndromes by providing funding and access, when permission is granted, to members.
• Sponsoring events for affected individuals and their families to gather, learn and share experiences.
• Providing accurate information about the ectodermal dysplasia syndromes to professional groups who deal with individuals affected by the ectodermal dysplasia syndromes.
• Providing a compassionate experience for all who come into contact with the Foundation.
• Support for national advocacy efforts to ensure health care reform and to improve third party reimbursements for affected individuals.
• Facilitating partnerships with health professionals to provide quality care at reasonable fees for individuals affected by the ectodermal dysplasia syndromes and providing financial assistance for treatment where appropriate. 
• Integrity in relationships with affected individuals and others.
• The value of volunteers to meet the Foundation's goals.
• The role of technology to enhance communication with families, practitioners, supporters, and the public. 
• Assuring donors that their contributions make a difference. 
• Enhancing the Foundation's visibility among philanthropic organizations to meet the Foundation's mission.