The National Foundation for Ectodermal Dysplasias depends on the generosity of our donors to fund our services to families, public awareness efforts and our search for a cure. Each donation is vital, whether it is given by an individual, a corporation, a bequest or in a fundraising event.
The NFED…
Stands as the only charity in the United States providing comprehensive services to families affected by ectodermal dysplasia syndromes.
Spends 88 cents of every dollar raised on family services, education efforts, treatment and ectodermal dysplasia related research.
Has awarded $518,894.05 in grants have stimulated more than 2 million dollars in ED research. The NFED has helped with locating several ED genes, determining the safety of dental implants for people with ED and identifying peeling skin as a diagnostic symptom for ED.
Is the largest clearinghouse of information on the ED syndromes in the world.
Has provided more than $423,000 to ED patients for dentures, dental implants, wigs, air conditioners, cooling vests and other medical and dental care. The NFED helps pay for care when no one else will.
Since NFED's inception the average age of diagnosis has lowered from 9.08 years old to 1.87 years old.
