National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Other Resources

Dental Resources

American Dental Association
This Web site includes a directory of American Dental Association members along with dental care, research, and clinical resources.

National Institute of Dental and Craniofacial Research (NIDCR)
This Web site has information on research activities and dental, oral, and craniofacial genetic disorders.

American Academy of Pediatric Dentistry
This Web site includes a long listing of dental resources and publications along with an area just for kids!

American College of Prosthodontists
This Web site is a good source of information for rehabilitative dentistry.

Nobel Biocare
This Web site provides information on dental implants.

Dermatology Resources

American Academy of Dermatology
This Web site is a good source of information on dermatology and includes a link to find a dermatologist by zip code.

Camp Discovery
Camp Discovery offers a camping experience for young people with chronic skin conditions.

Genetic Resources

March of Dimes Resource Center
Topics ranging from birth defects information to infant health statistics to public policy are presented at this website.

Family Village
A comprehensive website that contains information and resources and provides chat rooms for people with a range of disabilities, their families, and their healthcare providers.

Genetic Alliance
This Web site contains a directory of genetic organizations and useful resources including information on genetics, education, disability, research, health care, and health insurance.

National Organization for Rare Disorders (NORD)
This Web site lists the Rare Disease Database and the Organizational Database, and other general information on rare diseases with contacts to support groups.

Office of Rare Diseases
This Web site provides information on more than 6,000 rare diseases. It is separated into four categories: patient resources about rare conditions and their treatment, education and support organizations of interest, resources for research on rare diseases, and rare diseases clinical research database.

National Institutes of Health (NIH)
This Web site contains research news, health information, and the NIH Calendar of Events

International Ectodermal Dysplasias Support Organizations

Miscellaneous Links

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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