National Foundation for Ectodermal Dysplasias

 Board of Directors

Scientific Advisory Council

Patient Care Council

Mother of Child Affected by Ectodermal Dysplasia
Julie Claeys

Retired from Virginia Commonwealth University School of Dentistry
Frank H. Farrington, D.D.S., M.S.

University of Missouri Health Care
Timothy J. Fete, M.D., M.P.H.

University of North Carolina Chapel Hill
Albert D. Guckes, DDS, M.S.D.

University of Missouri at Kansas City School of Dentistry
Leonard Lausten, D.D.S.

Private practice dentist in Dallas, Texas
Sarah Tevis Poteet, D.D.S., P.A.

Saint Louis University School of Medicine
John Stith, M.D.

Tufts University School of Dental Medicine
Thomas Vergo, Jr., D.D.S.

Family Support Council

Chair -David Freestone, M.D.
George Barbar
Frank Farrington, D.D.S., M.S.
Donald Huebener, D.D.S.
Pam Kennedy
Jack Kriz
Sarah Tevis Poteet, D.D.S.

Chairman
University of Iowa
Clark Stanford, D.D.S., Ph.D.

Secretary
Dermatology Specialists of Houston
Alanna F. Bree, M.D.

Liaison from the Board of Directors
Retired from Virginia Commonwealth University School of Dentistry
Frank H. Farrington, D.D.S., M.S.

University of Missouri-Columbia School of Medicine
Timothy J. Fete, Sr., M.D., M.P.H.

Saint Louis Children’s Hospital
Dorothy Katherine Grange, M.D.

Baylor University
Brody J. Hildebrand, D.D.S.

University of Colorado Denver
Maranke I. Koster, Ph.D.

Baylor College of Medicine
Richard A. Lewis, M.D., M.S.

Baylor College of Medicine
Kathleen Motil, M.D., Ph.D.

University of Iowa
Lina M. Moreno Uribe, D.D.S., Ph.D.

St. Mary’s Health Center
Jill Powell, M.D.

Saint Louis University School of Medicine
Elaine C. Siegfried, M.D.

Cleveland Clinic, Head and Neck Institute
Raj Sindwani, M.D., FACS, FRCS

University of North Carolina Chapel Hill
Margo B. Stein, Ph.D.

University of North Carolina Chapel Hill
J. Timothy Wright, D.D.S., M.S.