National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Board of Directors and Councils

 

 Board of Directors

 

Scientific Advisory Council

President - Anil Vora
Vice President - George Barbar
Secretary - Pamela Kennedy
Treasurer - Brian F. Randall
Financial Advisor - Liz Arro, C.P.A.
Office Liaison - Jack Kriz
Samuel El-Ebrashi, B.D.S., M.S., F.A.C.P.
Rick Emery
Frank H. Farrington, D.M.D., M.S.
David Freestone, M.D.
Ruth Geismar
Paul Hamm
Jack Kriz
Brett T. Schott, C.F.R.E.
John A. Stith, M.D.
Sarah Tevis Poteet, D.D.S.
Emeritus Board Member - John E. Gilster, D.D.S.
Honorary Board Member - Mary Kaye Richter

 

 

Patient Care Council

Mother of Child Affected by Ectodermal Dysplasia
Julie Claeys

Private Practice, Portland, Oregon
Samuel El-Ebrashi, B.D.S., M.S., F.A.C.P.
Retired from Virginia Commonwealth University School of Dentistry
Frank H. Farrington, D.D.S., M.S.

University of Missouri Health Care
Timothy J. Fete, M.D., M.P.H.

University of North Carolina Chapel Hill
Albert D. Guckes, DDS, M.S.D.

University of Pennsylvania School of  Dental Medicine
Jonathan Korostoff, D.M.D., Ph.D.
 
University of Missouri at Kansas City School of Dentistry
Leonard Lausten, D.D.S.

Private practice dentist in Dallas, Texas
Sarah Tevis Poteet, D.D.S., P.A.

Saint Louis University School of Medicine
John Stith, M.D.

Tufts University School of Dental Medicine
Thomas Vergo, Jr., D.D.S.

 

Family Support Council

Chair - Pam Kennedy
Da'Nella Anderson
Julie Claeys
Jack Kriz
Terri Matus
 

 

 

 

 

 

 

 

 

 

 

 

 

Chairman
University of Iowa
Clark Stanford, D.D.S., Ph.D.

Secretary
Dermatology Specialists of Houston
Alanna F. Bree, M.D.

Liaison from the Board of Directors
Retired from Virginia Commonwealth University School of Dentistry
Frank H. Farrington, D.D.S., M.S.

University of Missouri-Columbia School of Medicine
Timothy J. Fete, Sr., M.D., M.P.H.

Saint Louis Children’s Hospital
Dorothy Katherine Grange, M.D.

Baylor University
Brody J. Hildebrand, D.D.S.

University of Colorado Denver
Maranke I. Koster, Ph.D.

Baylor College of Medicine
Richard A. Lewis, M.D., M.S.

Baylor College of Medicine
Kathleen Motil, M.D., Ph.D.

University of Iowa
Lina M. Moreno Uribe, D.D.S., Ph.D.

St. Mary’s Health Center
Jill Powell, M.D.

Saint Louis University School of Medicine
Elaine C. Siegfried, M.D.

Cleveland Clinic, Head and Neck Institute
Raj Sindwani, M.D., FACS, FRCS

University of North Carolina Chapel Hill
Margo B. Stein, Ph.D.

University of North Carolina Chapel Hill
J. Timothy Wright, D.D.S., M.S.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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