National Foundation for Ectodermal Dysplasias

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By Marc Steingesser

This video documents my PROSE Lens fitting and training experience.  I created it to help inform our NFED family with EEC, and other forms of ectodermal dysplasias that affect the eye, about an option for protecting (and possibly assist with healing) our corneas and improving our vision.

I hope the video is helpful. Questions are welcomed and can be submitted to me via the NFED.  More information on PROSE Lenses can also be obtained by contacting Dr. Michelle Hessen of the Wilmer Eye Institute at Johns Hopkins Hospital in Baltimore, MD (410-955-5080), and by visiting the Boston Foundation for Sight web page at

Note from NFED:

The following sites also provide PROSE lenses:

• Baylor College of Medicine, Houston, Texas
• Bascom Palmer Eye Institute, Miami, Florida
• Brooke Army Medical, San Antonio, Texas
• Doheny Eye Center, L.A., California
• Illinois Eye and Ear, Chicago, Illinois
• Kellogg Eye Center, Ann Arbor, Michigan
• North Shore - LIJ, Long Island, New York
• F.I. Proctor Foundation, San Francisco, California
• Weill Cornell Eye, NY, New York
• Wilmer Eye Institute, Baltimore, Maryland