National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

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News Room

We are inspired by NFED families in the news. Let these articles inspire YOU to help spread ectodermal dysplasias awareness in your community!


Bullskin Toddler Suffers From Ectodermal Dysplasia

Owen McCulloch, 7, has rare genetic condition called ectodermal dysplasia which means he cannot sweat.

Smyrna Girl Rides in Parade to Raise Awareness of Rare Genetic Disorder

Irving Man Can't Sweat, But It's Cool by Him

Student Delves Into His Distinctivness

Arizona's Radley Forced to Sweat Another Way

George Beats Medical Condition To Win Youth Theater Place

Golf Tournament to Benefit Boy With Ectodermal Dysplasias

Little boy defies doctors, beats the odds

Levi Hawken - The Bomb: Legendary Skateboarder and Now Artist in New Zealand

Kelso Family, Friends to Rally for Ally in Nottoway

Boy, 10, Who Would Overheat in PE Lessons Due to Rare Sweat Gland Condition Takes Up Snowboarding

Johnstown mother to use February to raise awareness of ectodermal dysplasias

No Sweat Dealing With Problems

No Sweat: Overcoming Adversity on the Volleyball Court

Saving Jackson: The danger of a simple cold

Parents find blessing every day in 10-year-old

Princess of the Cove

Swim-4-Sweat touches hearts

9-year-old knows not to sweat it: Tournament’s namesake sets example in living with disease

How Georgia Ivery’s new hair changed her life

Hohman hasn’t let condition slow him down

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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