National Foundation for Ectodermal Dysplasias
Mary Fete, R.N., M.S.N., C.C.M.
I have the best of all worlds working at the NFED. My daily responsibilities include working with wonderful individuals and families to help them with treatment and health-related questions. I also am very fortunate to work with some of the best researchers in the world as we continue to make great strides in ectodermal dysplasia research. Give me a call. I would love to talk with you!
Director, Family and Community Programs
My experience at the NFED continues to be amazing with each family contact. I have the privilege of providing support and resources to your families. Not only do I get to share information with families, I learn a great deal in return.
Jodi Edgar Reinhardt
Director, Marketing and Communications
It is an honor to raise awareness and funds for these rare disorders. I enjoy meeting the families, hearing their stories and then being able to share them with others to increase understanding. Working together, we can achieve great things! I consider the NFED my second family and thank them for letting me share their lives and for all that they teach me.
Family Fundraising Coordinator
Its hard to convey the dedication and compassion that the rest of the staff has for its NFED families. They are a close knit, devoted group whose hearts are all in the right place. With their help, I hope to do some good things during my time with the NFED. I look forward to hearing about all of your great fundraising ideas. I may not always get it right but I’ll keep trying.
I am honored to be a part of the NFED team and to get the opportunity to connect with those affected by ectodermal dysplasias. I cannot wait to meet families and to be able to hear their stories. Your experiences can teach us so much and I’m eager to learn from them. Thank you for sharing your lives with us!
Manager, Community Engagement
I had the most inspiring, enjoyable, first National Family Conference experience. I met so many great, enthusiastic, loving, caring, dedicated, smiling adults & children whom I am honored to call my new friends. Thank you for letting me be part of the NFED family! I am learning from yesterday, live for today, and hope for tomorrow. When life’s problems seem overwhelming, I look around and see what other people are coping with and decide not to be discouraged. For me, it is important to feed my faith and my fears will starve to death! When life gives me a hundred reasons to cry, I show life that I have a thousand reasons to smile. I don’t wait. I make memories today. I celebrate my life. Thank you for letting me join in celebrating your lives and making new memories!
Manager, Program Operations
I am privileged to work for the NFED where everyone is a family. As a new member of the staff, I can’t wait to meet families and hear their stories, which will ultimately help me work with the program team for support, research and treatment of ectodermal dysplasias. I look forward to all the things that our individuals and families that are affected by ectodermal dysplasias will be teaching me in the present and future.