National Foundation for Ectodermal Dysplasias
Our Staff
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Judy Woodruff
Executive Director
2011-present
It is an honor to be welcomed so warmly into the NFED family, I look forward to working with our exceptional staff, board of directors, and families to continue the work of NFED. Mary Kaye has built a wonderful foundation that has assisted many people throughout the past 30 years. I am humbled to have the opportunity to help continue that legacy of excellence for those affected by ectodermal dysplasias who rely on our help.
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Carol Agne
Director of Development
2005-present
I enjoy getting to know families through my work for the NFED. I look forward to helping you create a fundraising event that will build relationships in your community and help spread the word about ectodermal dysplasias and the NFED.
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Kelley Atchison
Director of Family Support and Outreach
2001-present
My experience at the NFED continues to be amazing with each family contact. I have the privilege of providing support and resources to your families. Not only do I get to share information with families, I learn a great deal in return.
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Jodi Edgar Reinhardt
Director of Public Relations
1994-present
It is an honor to raise awareness and funds for these rare disorders. I enjoy meeting the families, hearing their stories and then being able to share them with others to increase understanding. Working together, we can achieve great things! I consider the NFED my second family and thank them for letting me share their lives and for all that they teach me.
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Mary Fete, R.N., M.S.N., C.C.M.
Director of Research and Treatment
2002-present
I have the best of all worlds working at the NFED. My daily responsibilities include working with wonderful individuals and families to help them with treatment and health-related questions. I also am very fortunate to work with some of the best researchers in the world as we continue to make great strides in ectodermal dysplasia research. Give me a call. I would love to talk with you!
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Malinda Heuring
Director of Education
1997–present
In my tenure with the NFED, among many other things, I have enjoyed meeting new families, watching amazing kids grow up and the excitement that comes from a mom or dad who successfully fought their insurance company.
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Gale Hoedebeck
Director of Administration
2011-present
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Beverly Meier
Director of Finance and Records
1982-present
I have been with the NFED since my good friend, Mary Kaye, asked me to help her type some letters, and that was in 1981. This was not the road that I had planned to travel but this wonderful adventure that I have had has been more rewarding than I could have ever anticipated. Thanks to the many families that I have had the pleasure of meeting over the years. May the adventure continue!
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Lea Richardson
Office Operations & Database Administrator
2011-present
I had the most inspiring, enjoyable, first National Family Conference experience. I met so many great, enthusiastic, loving, caring, dedicated, smiling adults & children whom I am honored to call my new friends. Thank you for letting me be part of the NFED family! I am learning from yesterday, live for today, and hope for tomorrow. When life’s problems seem overwhelming, I look around and see what other people are coping with and decide not to be discouraged. For me, it is important to feed my faith and my fears will starve to death! When life gives me a hundred reasons to cry, I show life that I have a thousand reasons to smile. I don’t wait. I make memories today. I celebrate my life. Thank you for letting me join in celebrating your lives and making new memories!
