National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Our Staff

  • Mary Fete, M.S.N., R.N., C.C.M.

    Mary Fete, M.S.N., R.N., C.C.M.

    Executive Director
    I have the best of all worlds working at the NFED. My daily responsibilities include working with wonderful individuals and families to help them with treatment and health-related questions. I also am very fortunate to work with some of the best researchers in the world as we continue to make great strides in ectodermal dysplasia research. Give me a call. I would love to talk with you!
  • Kelley Atchison

    Kelley Atchison

    Director, Family and Community Programs
    My experience at the NFED continues to be amazing with each family contact. I have the privilege of providing support and resources to your families. Not only do I get to share information with families, I learn a great deal in return.
  • Brittany Campbell

    Brittany Campbell

    Manager, Development
    I am beyond thrilled to work for the NFED and to be a part of the development and growth for an organization that has accomplished so much since its inception almost 35 years ago. The enthusiasm the staff has for the mission by supporting, educating and connecting the families affected by ectodermal dysplasias is truly inspiring. I am touched by the stories I've read and to see how the NFED has made such a difference in so many lives, that they consider the staff also as part of their families.
  • Jodi Edgar Reinhardt

    Jodi Edgar Reinhardt

    Director, Marketing and Communications
    It is an honor to raise awareness and funds for these rare disorders. I enjoy meeting the families, hearing their stories and then being able to share them with others to increase understanding. Working together, we can achieve great things! I consider the NFED my second family and thank them for letting me share their lives and for all that they teach me.
  • Seth Ferris

    Seth Ferris

    Family Fundraising Coordinator
    Its hard to convey the dedication and compassion that the rest of the staff has for its NFED families. They are a close knit, devoted group whose hearts are all in the right place. With their help, I hope to do some good things during my time with the NFED. I look forward to hearing about all of your great fundraising ideas. I may not always get it right but I’ll keep trying.
  • Kayla Hollenkamp

    Kayla Hollenkamp

    Administrative Assistant
    I am honored to be a part of the NFED team and to get the opportunity to connect with those affected by ectodermal dysplasias. I cannot wait to meet families and to be able to hear their stories. Your experiences can teach us so much and I’m eager to learn from them. Thank you for sharing your lives with us!
  • Lea Richardson

    Lea Richardson

    Manager, Community Engagement
    I had the most inspiring, enjoyable, first National Family Conference experience. I met so many great, enthusiastic, loving, caring, dedicated, smiling adults & children whom I am honored to call my new friends. Thank you for letting me be part of the NFED family! I am learning from yesterday, live for today, and hope for tomorrow. When life’s problems seem overwhelming, I look around and see what other people are coping with and decide not to be discouraged. For me, it is important to feed my faith and my fears will starve to death! When life gives me a hundred reasons to cry, I show life that I have a thousand reasons to smile. I don’t wait. I make memories today. I celebrate my life. Thank you for letting me join in celebrating your lives and making new memories!

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360