National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Our Staff

  • Kelley Atchison

    Kelley Atchison

    Director of Support
    2001-present
    My experience at the NFED continues to be amazing with each family contact. I have the privilege of providing support and resources to your families. Not only do I get to share information with families, I learn a great deal in return.
  • Jodi Edgar Reinhardt

    Jodi Edgar Reinhardt

    Director of Marketing and Communications
    1994-present
    It is an honor to raise awareness and funds for these rare disorders. I enjoy meeting the families, hearing their stories and then being able to share them with others to increase understanding. Working together, we can achieve great things! I consider the NFED my second family and thank them for letting me share their lives and for all that they teach me.
  • Mary Fete, R.N., M.S.N., C.C.M.

    Mary Fete, R.N., M.S.N., C.C.M.

    Executive Director
    2002-present
    I have the best of all worlds working at the NFED. My daily responsibilities include working with wonderful individuals and families to help them with treatment and health-related questions. I also am very fortunate to work with some of the best researchers in the world as we continue to make great strides in ectodermal dysplasia research. Give me a call. I would love to talk with you!
  • Lea Richardson

    Lea Richardson

    Admininstrative Assistant
    2011-present
    I had the most inspiring, enjoyable, first National Family Conference experience. I met so many great, enthusiastic, loving, caring, dedicated, smiling adults & children whom I am honored to call my new friends. Thank you for letting me be part of the NFED family! I am learning from yesterday, live for today, and hope for tomorrow. When life’s problems seem overwhelming, I look around and see what other people are coping with and decide not to be discouraged. For me, it is important to feed my faith and my fears will starve to death! When life gives me a hundred reasons to cry, I show life that I have a thousand reasons to smile. I don’t wait. I make memories today. I celebrate my life. Thank you for letting me join in celebrating your lives and making new memories!
  • Amy Rush

    Amy Rush

    Administrative Assistant to Programs
    2012-present
    I am privileged to work for the NFED where everyone is a family. As a new member of the staff, I can’t wait to meet families and hear their stories, which will ultimately help me work with the program team for support, research and treatment of ectodermal dysplasias. I look forward to all the things that our individuals and families that are affected by ectodermal dysplasias will be teaching me in the present and future.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.