Thank you for your interest in the National Foundation for Ectodermal Dysplasias (NFED). This Web site will provide you with some basic information about the ectodermal dysplasias as well as the services the NFED has to offer. For more comprehensive information and support, you will certainly want to email or call us at the NFED office.
Our mission is to empower and connect people touched by ectodermal dysplasias through education, support, and research.
A listing of the booklets and resources available for purchase is available by clicking on Publications. Our bi-monthly newsletter, The Educator, is devoted exclusively to the special interests and needs of the ectodermal dysplasia community. You will find a library of medical and dental guides, children’s books and articles addressing specific issues.
The NFED Research Program has been instrumental in increasing understanding of the ectodermal dysplasias, identifying genes and identifying improved treatments. If you are affected by ectodermal dysplasias, there are opportunities for you to participate in some projects which can help all of us in the ectodermal dysplasias community.
If you are affected by ectodermal dysplasia or have an immediate family member who has been recently diagnosed and would like to receive information and support, simply click on the Just Diagnosed? Register Here to learn about how our First Connect program can help you and to register.
As you navigate through the pages of this Web site, you will see some of the most accurate and reliable information available about this group of rare disorders. However, please remember that one should always consult with a medical or dental professional for advice.