National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

How to Help

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You can make a real difference in the lives of children and adults affected by ectodermal dysplasias by supporting the National Foundation for Ectodermal Dysplasias. When you donate to the NFED, your gift will immediately go to work to provide support and hope to our families affected by ectodermal dysplasias. You can be assured that the NFED uses its funds wisely as $0.75 cents of every dollar raised is spent on support, research and treatment.

Have you considered holding a fundraiser to benefit the NFED? There are many creative ways to raise money, and you can easily tailor a fundraiser to make it easy for you to run. Some people enjoy hosting benefit meals, for example, a spaghetti dinner. To create more community awareness, you can call your local newspaper and ask them to run a story advertising your event.

If you would rather try something on a smaller scale, you can try writing a letter explaining to people how the NFED has helped you or your family, and then share it via regular mail or e-mail with family, friends, and co-workers. By then asking all of your contacts to forward your message on to their contacts, you can reach an amazing number of people with minimal effort.

Several families have had success asking people to donate in honor of their birthday, their child’s birthday, or in memory of someone special to them. As birthdays and anniversaries roll around each year, this would be an easy fundraiser to implement and keep going for years to come.

Be sure to remind everyone that you reach that they can donate online, or they can mail their donations to the office at 6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360.

Before you begin planning, be sure to contact the office (618-566-2020). The NFED is happy to provide anyone who requests it with “A Guide to Raising Funds and Awareness for NFED - You Can Do It.” This helpful guide walks you through the planning process, and even gives helpful hints to make your event a success. There is an authorization form that we ask people to fill out and return to us prior to their event. If you have any questions, please call Kitty at 618-566-6874, and she will be happy to help. Happy fundraising!

Site Copyright 2010 by National Foundation for Ectodermal Dysplasias. All Rights Reserved. St. Louis web design by Insite Advice.
The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360