Andy Trevino’s Story
August 18, 2010Traveled 3,000 miles for a miracle...
Do you have a story to share about your experience with ectodermal dysplasia? We welcome your feelings and thoughts about how you have come to terms with being a parent of a child with ectodermal dysplasia, being an adult with ectodermal dysplasia or being a young person with ectodermal dysplasia. Once we receive and review your submission, we will let you now if and when it will be posted here.
Please email your story to info@nfed.org.
Subject line should read: NFED Inspirational Story for Web site
Please include your name (and age, if desired). If you have them, please include 1 or 2 photos in jpeg file format.