National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

News & Events

Latest News Upcoming Events

Enter Our Photo Contest

14 Things You Didn’t Know About Ectodermal Dysplasias

My Name is Ella. I Am Unique.

Meet Our Little X-Man

Ectodermal Dysplasias Awareness Month

“The Doctors” to Feature Ectodermal Dysplasias

Still Time to Make Your Year-End Gift

Watch Our Holiday Video!

Edimer Expands Newborn XLHED Clinical Trial

Can Ultrasound Help Diagnose XLHED in Unborn Babies?

Genetic Testing:  Live Q and A on Facebook

Celebrate Giving Tuesday with Us

View Halloween Bash Journal

The Importance of Mouth Guards

Five Babies Have Been Treated in Clinical Trial

XLHED Natural History Study Now Enrolling

Taking Ectodermal Dysplasia Concerns to the Hill

Bruno’s Golf Outing for NFED

Family Conference Locations for the Next Three Years

Listen to Mary K. Richter’s Motivational Speech

Remembering Dr. G

XLHED Women’s Forum

Family Conference is Full

10th Annual Rally for Ally

Why You Should Care About the XLHED Research Study

Seth Ferris Joins NFED Staff

Apology Response Open Letter to Mr. Shaquille O’Neal

Open Letter to Mr. Shaquille O’Neal

Welcome Kim Hardin as Pennsylvania Liaison

XLHED Research Progress - Front Page News

Third Family Participates in XLHED Clinical Trial

Joliet Woman’s Group Starts Scholarship to Help Families Affected by Goltz Syndrome

Edimer Enrolling Patients in XLHED Newborn Study

Rare Disease Day 2014

New Executive Director Named

Kayla’s 5K - 2015

Regional Family Conference - NY

Family Conference - Day 1

Family Conference - Day 3

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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