National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

News & Events

Latest News Upcoming Events

New Brand is Launched!

Spring Educator Now Available Online

Help Needed with Social Media, Writing, Advocacy, More

Free Straumann Implants

Let’s Celebrate Our Graduates

Awareness Month Photo Contest Winners

Honoring Dr. Carlos F. Salinas

8 Tips for Getting Your Child to Wear Dentures

Enter Our Photo Contest

14 Things You Didn’t Know About Ectodermal Dysplasias

My Name is Ella. I Am Unique.

Meet Our Little X-Man

Ectodermal Dysplasias Awareness Month

“The Doctors” to Feature Ectodermal Dysplasias

Still Time to Make Your Year-End Gift

Watch Our Holiday Video!

Edimer Expands Newborn XLHED Clinical Trial

Can Ultrasound Help Diagnose XLHED in Unborn Babies?

Genetic Testing:  Live Q and A on Facebook

Celebrate Giving Tuesday with Us

View Halloween Bash Journal

The Importance of Mouth Guards

Five Babies Have Been Treated in Clinical Trial

XLHED Natural History Study Now Enrolling

Taking Ectodermal Dysplasia Concerns to the Hill

Bruno’s Golf Outing for NFED

Family Conference Locations for the Next Three Years

Listen to Mary K. Richter’s Motivational Speech

Remembering Dr. G

XLHED Women’s Forum

Family Conference is Full

10th Annual Rally for Ally

Why You Should Care About the XLHED Research Study

XLHED Research Progress - Front Page News

Sweat It Out 5K Run and Walk

11th Annual Rally for Ally

AEC/EEC Syndrome Research Day

Ectodermal Dysplasias Research Lab Tour

Goltz Research Conference

Family Conference - Day 1

Family Conference - Day 2

Family Conference - Day 3

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360