National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

News & Events

Latest News Upcoming Events

You Are Invited to Our Halloween Bash

Rain Dampens Walk//Run But Not Spirits

Johnson No Sweat Scramble Draws 18 Teams

Nelsen Family’s First Event Is Wildly Successful

Bruno’s Golf Outing Another Great Success

Apply for Funding for Children’s Dentures

One Guy. Two Wheels. Three Fingers. Biking to Conference

Check Out These Family Videos!

Keene’s Crawfish Event Boils Over With Success

Families Have A Splashing Good Time in Michigan

12th Annual Rally for Ally

Brayden’s Create-A-Smile Car Show and Concert

Sell “Cookies for a Cure”

Families Bond on TV Show

35th Anniversary Celebration Dinner

Don’t Sweat It Fun Walk Doubles Goal

Watch Video of Our 2015 Annual Report

Remembering Rob Heberer

Join The Smile Makers

Watch Our New NFED Video!

Ectodermal Dysplasias Awareness Month

Why Should You Volunteer for the NFED?

New: XLHED Family In EU Needed for Trial

Critical Update: Newborn XLHED Clinical Trial

Welcome, Brittany. Good Luck, Amy!

Remembering Beverly Meier

2015 Halloween Bash

Honoring Dr. Frank Farrington

Donate to NFED Through the CFC

How Does Ectodermal Dysplasia Affect the Throat?

Family Conference 2015

Watch Video of 2014 Annual Report

New Brand is Launched!

Spring Educator Now Available Online

Help Needed with Social Media, Writing, Advocacy, More

Free Straumann Implants

Let’s Celebrate Our Graduates

Awareness Month Photo Contest Winners

Honoring Dr. Carlos F. Salinas

8 Tips for Getting Your Child to Wear Dentures

Enter Our Photo Contest

14 Things You Didn’t Know About Ectodermal Dysplasias

My Name is Ella. I Am Unique.

Meet Our Little X-Man

“The Doctors” to Feature Ectodermal Dysplasias

Still Time to Make Your Year-End Gift

Watch Our Holiday Video!

Edimer Expands Newborn XLHED Clinical Trial

Can Ultrasound Help Diagnose XLHED in Unborn Babies?

Genetic Testing:  Live Q and A on Facebook

Celebrate Giving Tuesday with Us

View Halloween Bash Journal

The Importance of Mouth Guards

Five Babies Have Been Treated in Clinical Trial

XLHED Natural History Study Now Enrolling

Taking Ectodermal Dysplasia Concerns to the Hill

Bruno’s Golf Outing for NFED

Family Conference Locations for the Next Three Years

Listen to Mary K. Richter’s Motivational Speech

Remembering Dr. G

XLHED Women’s Forum

Family Conference is Full

10th Annual Rally for Ally

Why You Should Care About the XLHED Research Study

XLHED Research Progress - Front Page News

Beat the Heat 5K Fun Walk - Illinois

Randi Walker’s Lake Powell Half Marathon

Bowling for Bites - Ohio

Seth Ferris - 4th NYC Marathon

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360