National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

News & Events

Latest News	Upcoming Events
Survey for Individuals with Genetic Conditions Don’t Sweat It Walk - Fairview Heights, IL Survey Results are In Don’t Sweat It Walks 2013 The Spring 2013 Educator is Now Available Celebrating Our New Home With Open House Wusstig Joins Staff Ojai Mother Wants to Raise Awareness of Hay-Wells Syndrome Camp Discovery 2013 The NFED is Moving Its Headquarters Donate to NFED Through the CFC Clients With Cleft Issues in Massachusetts Benefit from New Law Beverly Meier Retires After 31 Years Adults Affected by X-Linked HED Needed for Study Cooling Tips “Blues for a Cure” in the news Historic Bethel German Colony site of “Don’t Sweat It Walk” 2011 Annual Report Hartland Community Rallies Around Baby Battling Rare Skin Disorder Edimer Receives Fast Track Designation for EDI200 Bullskin Toddler Suffers from Ectodermal Dysplasias Parenting Survey Straumann Raises Awareness of NFED Remembering Reverend Charles J. Sheffield Zach Hamm’s Don’t Sweat It Golf Classic 2012 Family Conference Registration Brochure Now Available Watch Video of Owen McCulloch Ectodermal Dysplasias Awareness Month Moves to June Connecting Lives: 30 Years of Research Success Are Neti-Pots Safe to Use? Smyrna Girl Rides in Parade to Raise Awareness for Genetic Disorder 2012 National Family Conference Photos from the 11th Annual Halloween Bash Use What You Got Rapp Hodgkin and Hay Wells: The Same Disorder? Bruno’s Golf Outing Irving Man Can’t Sweat, But It’s Cool By Him Welcome Judy Blase Woodruff as Our New Executive Director The NFED’s 30th Anniversary Gala - Photos Arizona’s Radley Forced To Sweat Another Way Mississippi Regional Family Conference XLHED Carrier Study 2011 National Family Conference - Photos and Media Links Little boy defies doctors, beats the odds 2010 Annual Report Males Affected by XLHED Needed for Research Study at UCSF Founder and Executive Director Retires	Don’t Sweat It Walk - Fairview Heights, IL Don’t Sweat It 4-Mile Walk - Omaha, NE Don’t Sweat It Walk - Newark, CA Animals for Ava Don’t Sweat It Walk - Grove City, OH 2013 Goltz Reserch Conference 2013 Goltz Reserch Conference 2013 National Family Conference 2013 National Family Conference 2013 National Family Conference 2013 National Family Conference Board of Director’s Meeting Board of Director’s Meeting