National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

News & Events

Latest News Upcoming Events

Don’t Sweat It Walk Grove City, OH 2012

Don’t Sweat It Walk Tracy, CA 2012

Straumann Raises Awareness of NFED

5th International Conference on Ectodermal Dysplasia: Care and Clinical Trials

Remembering Reverend Charles J. Sheffield

Rally for Ally

Don’t Sweat It Golf Tournament 2012

Don’t Sweat It Walk 2012

2012 Family Conference Registration Brochure Now Available

Watch Video of Owen McCulloch

Ectodermal Dysplasias Awareness Month Moves to June

Connecting Lives: 30 Years of Research Success

Are Neti-Pots Safe to Use?

Smyrna Girl Rides in Parade to Raise Awareness for Genetic Disorder

Photos from the 11th Annual Halloween Bash

Use What You Got

Rapp Hodgkin and Hay Wells: The Same Disorder?

Bruno’s Golf Outing

Irving Man Can’t Sweat, But It’s Cool By Him

Welcome Judy Blase Woodruff as Our New Executive Director

The NFED’s 30th Anniversary Gala - Photos

Arizona’s Radley Forced To Sweat Another Way

Mississippi Regional Family Conference

XLHED Carrier Study

2011 National Family Conference - Photos and Media Links

Little boy defies doctors, beats the odds

2010 Annual Report

Males Affected by XLHED Needed for Research Study at UCSF

Founder and Executive Director Retires

2012 National Family Conference

Webinar: Bite Into This: Dental Implants

Webinar: Women’s Health Study - The Results Are In!

Webinar: How to Treat Nasal Rocks, Ear Wax and Other ENT Issues

Don’t Sweat It Walk 2012

Don’t Sweat It Golf Tournament 2012

Classification Conference

Zach Hamm’s Don’t Sweat It Golf Classic

5th International Conference on Ectodermal Dysplasia: Care and Clinical Trials

Don’t Sweat It Walk Poughkeepsie, NY 2012

Don’t Sweat It Walk Bethel MO 2012

Don’t Sweat It Walk Newark, CA 2012

Huxman Run 2 Sweat

Don’t Sweat It Walk Tracy, CA 2012

Don’t Sweat It Walk Grove City, OH 2012

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