National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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10th Annual Rally for Ally

AllyHosted by the Kelso, Matus and George Families

Saturday, June 21, 2014

Nottoway Park

9601 Courthouse Rd

Vienna, VA 22181

 

This year's Rally for Ally will feature commemorative t-shirts, lots of great raffle/auction prizes, yummy barbecue, treats, drinks and an abundance of fun! For more information or donation of raffle/auction/food items, contact Ashli Matus George: AshliMatusGeorge@gmail.com or 703-919-2558.

We look forward to seeing YOU at Rally for Ally! This event is in honor of Allyson Kelso, born in 2004 with ectrodactyly-ectodermal cysplasia-clefting syndrome (EEC). All donations benefit the NFED.

 

Read the blog post  that a friend of mine wrote, who is the CEO of The Torch organization.

 

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