National Foundation for Ectodermal Dysplasias
2012 National Family Conference
Buena Vista Palace and Spa
Orlando, Florida
July 18-21, 2012
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We invite you to attend our 31st annual National Family Conference in magical Orlando, Florida. These four days will change your life.
We have hosted this conference for three decades for individuals who are affected by ectodermal dysplasias and their loved ones. You will receive the latest updates on research and treatment information. You will have the opportunity to participate in research if you so choose. Most importantly, you will connect with other families who share your syndrome, live in your area and who care about you.
It will be held at the beautiful Buena Vista Palace and Spa, which is directly across the street from Downtown Disney. All conference activities will be held in air-conditoned facilities.
You and your family will benefit in many ways:
- Learn you are not alone.
- Learn from stimulating discussions about medical and research updates.
- Share personal connections with others who care.
- Meet others to exchange ideas, support and advice.
- Gain knowledge of products helpful to people affected by ectodermal dysplasias.
- Be empowered to go home and make a difference.
Orlando is a great family destination so plan your vacation to coincide with the Conference.
Scholarships
Deadline for Applications: April 13, 2012
You can apply for a Family Conference Scholarship to receive funds to help you attend. Priority is given to first time attendees but we encourage all families who need assistance to apply.
Download Family Conference Scholarship Application.
Logistics
- The NFED has negotiated a sleeping room rate of only $109 per night.
- The conference will begin on the evening of Wednesday, July 18 and conclude on Saturday, July 21 late afternoon.
- The NFED has blocked a group of rooms at the Buena Vista Palace. The $109 per night rate is good until June 25th or until the room block is full.
- To make your reservation, you may either contact the Reservations department at 1-866-397-6516 and tell them you are a part of the NFED Summer Conference or use this link to directly make reservations.
2012 NFED Conference Registration Brochure
