National Foundation for Ectodermal Dysplasias
Ectodermal Dysplasias Awareness Month
Tell your ectodermal dysplasia story.
Join us on social media.
Facebook - Like the NFED Facebook page, view our timeline and participate in the conversation about Ectodermal Dysplasias Awareness Month.
Twitter - Follow Ectodermal Dysplasias Awareness Month on Twitter (@NFED_org). Retweet us and use the hashtag #EctodermalDysplasiasAwareness.
You Tube - Watch the videos, comment and link to the videos, updload your own awarness video to our Ectodermal Dysplasias channel.
Download Our Communication Materials
Download Fact Sheet.
Use an Ectodermal Dysplasias Awareness month banner on your Web site, Facebook page or blog. Link it to www.nfed.org or to this Ectodermal Dysplasias Awareness Month webpage.
Host an awareness or fundraisng event.
Contact the NFED office at 618-566-2020 to learn more.
Contact your local media.
Educating your local community is very important as it can make day-to-day life much easier for individuals who are affected. One of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story.