For 13 years, the National Foundation for Ectodermal Dysplasias has celebrated Ectodermal Dysplasias Awareness Month. The theme for this year is “I Speak Up for Ectodermal Dysplasias.” We hope to raise positive awareness around the ectodermal dysplasias and increase understanding of what life is like for someone affected. Help us tell the world about our amazing families and the rare, genetic condition that affects them.
Download the Ectodermal Dysplasias Awareness Calendar for ideas you can do each day.
Speak up! Tell us about your life with ectodermal dysplasia in 800 words or less. We will share these stories throughout February. You could tell about the challenges you have overcome, what you have learned from being affected by the condition, or any other interesting aspect of your story. Be sure to include photos. We can’t wait to hear them! Click here to submit your story now.
Write a blog telling your story and discussing Ectodermal Dysplasias Awareness Month and put a link to it on our Facebook page.
You may know first-hand how much easier your day-to-day life could be if your community understood what you experience. The quickest and easiest way to teach them is to contact your newspaper or local television station to do an interview and share your story.
You can educate your friends and family and their friends and family by posting content on social media. It's free and we just made it easier! In the Social Media Guide, we give you educational posts for Facebook, tweets for Twitter, and e mail signatures. All you have to do is copy them and post!
Even easier, you can repost or retweet things we post.
Download Facebook Banner #1
Download and Personalize Your Own Facebook Banner
Download Twitter Banner
Print the coloring page.
Have your child color as desired.
Have your child fill in words on what he or she wants the world to know about him or her.
See rules for how to submit to the contest.
Share on your social media and NFED's.