National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Ectodermal Dysplasias Awareness Month


Get Involved!

Tell your ectodermal dysplasia story. 

Join us on social media. 

  • Facebook - Like the NFED Facebook page, view our timeline and participate in the conversation about Ectodermal Dysplasias Awareness Month.
  • Twitter - Follow Ectodermal Dysplasias Awareness Month on Twitter (@NFED_org). Retweet us and use the hashtag #EctodermalDysplasiasAwareness.
  • You Tube - Watch the videos, comment and link to the videos, updload your own awarness video to our Ectodermal Dysplasias channel.

Download Our Communication Materials

  • Download Fact Sheet.
  • Use an Ectodermal Dysplasias Awareness month banner on your Web site, Facebook page or blog. Link it to or to this Ectodermal Dysplasias Awareness Month webpage.

Host an awareness or fundraisng event. 

  • Contact the NFED office  at 618-566-2020 to learn more. 

Contact your local media.

  • Educating your local community is very important as it can make day-to-day life much easier for individuals who are affected.  One of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story.

Wear your NFED apparel.   Visit our online store to order yours today!


Site Copyright 2010 by National Foundation for Ectodermal Dysplasias. All Rights Reserved. St. Louis web design by Insite Advice.
The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360