National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Seth Ferris Run -  NYC Marathon

Seth to Run in the NYC Marathon Again to Raise Money for the NFED

Sunday, November 2, 2014

Seth Ferris is running in honor of his son and all people affected by ectodermal dysplasias. 

Seth says, "The NFED means an awful lot to me and since I started working with them I see first hand how important they are to thousands of people, families and individuals with this condition.

My son Mac has this condition and the NFED has been a part of our family offering support and guidance since he was born. Mac has HED a type of ectodermal cysplasia that affects his hair, skin and teeth. He faces challenges that I never will but he doesn’t let these differences rule his life.

I am hoping to raise $5,000. These are much needed funds that will go along way for medical research, personal support and aid to people affected with ectodermal dysplasia."

Donate to Support Seth's Run 

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