Sunday, November 6, 2016
New York City
Seth Ferris is running his 4th New York City Marathon to raise awareness for ectodermal dysplasias and funds for our Treatment Assistance Program. Check out Seth's website to learn more about how you can support him and the NFED.
"I started running in this race as a way to give back and to honor my son Mac who has a form of ectodermal dysplasias known as hypohidrotic ectodermal dysplasia (HED. He is one of the most compassionate, caring and kind young men you will ever meet and he is a daily inspiration to me. He’s my hero. I’m sure all of you who have had the pleasure of meeting Mac feel the same way. I love him so much!