National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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New Executive Director Named

Mary Fete

The National Foundation for Ectodermal Dysplasias (NFED) Board of Directors is pleased to announce that they have named Mary Fete, M.S.N., R.N., C.C.M. as the NFED’s new Executive Director.

Mary has been with the NFED since 2002 and has made great strides in growing the foundation’s research and treatment programs. She has co-authored numerous journal publications on the ectodermal dysplasias and coordinated 20 health and research conferences.  Over the past few years, she has assumed responsibility for our family support programs and has initiated the NFED’s Helping Hands volunteer initiative.

In addition, Mary is a member of the Friends of the NIDCR, the American Nursing Association, Missouri Nurses Association and other organizations. She has led the NFED’s advocacy initiatives with the National Institutes of Health and other health organizations.

“Mary brings the passion and commitment to lead the organization forward, as we continue to work to achieve our mission,” said Anil Vora, Board President.  “We are confident in her leadership abilities and look forward to working with her.”

Mary Fete said, “I am both honored and thrilled to have the opportunity to step into the role of Executive Director for the NFED.  I have developed a passion for working with and for families and individuals affected by ectodermal dysplasias, in research, treatment and advocacy.  I look forward to working with our NFED  families, Board of Directors, Councils and our loyal staff to continue the great programs already in existence and to spearhead new efforts to grow and improve the quality of our contributions to the ectodermal dysplasias community.”

Mary earned her Bachelor of Science in Nursing at Saint Louis University in 2000 and her Master of Science in Nursing from the University of Missouri in 2002.  She has held numerous nursing and leadership positions prior to the NFED. She lives in Columbia, Missouri, with her husband, Dr. Timothy J. Fete and enjoys spending family time with her five children and eleven grandchildren.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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