National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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Ojai Mother Wants to Raise Awareness of Hay-Wells Syndrome

Jennifer Burell talks about her twin 8-year-olds, James and Keira, and their experience with AEC syndrome (aka Hay Wells syndrome). Read more.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.