National Foundation for Ectodermal Dysplasias
Watch Video of Owen McCulloch
Owen is unable to sweat. The little southeast Queensland boy has a rare genetic condition - ectodermal dysplasia - that affects the hair, teeth, nails and sweat glands. Watch video.
Note from NFED: Absolutely, families must take the proper precautions on hot days to say cool. However, don't let these kind of headlines make you so fearful that you don't let your child go outside to play. With some common sense and access to cooling, kids can - and do - play outside. Also, in our 30 years of experience, there is NOTHING to substantiate the statement in the article that "Experts believe up to a third of those children born with the disorder will die from overheating before their third birthdays." We find that statement to be completely false.
