National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

The Educator Newsletter

Current Issue - Fall 2014

The Educator - Spring 2014

We publish our newsletter, The Educator, two times a year. It is a great resource that is written especially for the ectodermal dysplasias community. New and informative articles by parents, affected adults, researchers, doctors, fundraisers, supporters and more, appear in each issue to connect you with others, share new insights, inspire action and keep you up to date on the work the NFED is doing to fulfill our mission.

If you would like to receive The Educator, email us.

If you would like to submit an article or provide feedback on a past issue, email us.

Past Issues


Spring 2014


Spring 2013
Fall 2013


Spring 2012
Fall 2012


Winter 2011
Spring 2011
Summer 2011


Winter 2010
Spring 2010

Summer 2010

Fall 2010


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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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