National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help

Survey Results are In

Last year, Lemuel J. Pelentsov, PhD candidate, BHSc (Hons), GDip (Emerg), BN, from the University of Australia, reached out to NFED families and asked them to take an online survey about the psychosocial needs of individuals affected by ectodermal dysplasia.  The survey has been tabulated and analyzed.   To read the results, click here.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.