National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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Goltz Research Conference

Texas Medical Center

Houston, Texas

July 22-23, 2013

This landmark conference will be the first of its kind for focal dermal hypoplasia syndrome, also known as Goltz syndrome. Goltz families will gather for this unbelievable opportunity to learn more about their syndrome and current research related to Goltz syndrome.  This Conference will take place immediately prior to the National Family Conference (July 24-27) in Houston, Texas. On the first day, expert researchers will give presentations. On the second day, our team of physicians and researchers will collect data from patients in order to better characterize Goltz syndrome.  
 
Participants will stay at the following hotel:
 
Marriott Houston at the Texas Medical Center
6580 Fannin St. 
Houston, TX  77030-2708
 
Download Schedule
 
Questions? Are you or a loved affected by Goltz syndrome and are interested in participating?
Email Mary Fete, NFED Sr. Director of Programs, or call 618-566-2020.

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