National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help


The NFED Research Program is committed to foster, advance, and support basic and applied research that will achieve improvements, treatments, preventions and ultimately cures for the diverse forms of the ectodermal dysplasias and their manifestations.

When the NFED was founded in 1981, very little was known about the ectodermal dysplasias and their treatment. In 1985, the Foundation expanded its mission to include funding seed grants for ectodermal dysplasias research and providing researchers with access to clients.

Since then, the NFED has funded more than $2.5 million in research at more than 40 centers around the world. Today, we better understand the conditions, have identified effective treatments and genes for 20 ectodermal dysplasias and continue to fund research toward a cure.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360