National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

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Family Conferences

Registration Brochure

Register Now for the 32nd Annual

NFED National Family Conference

 

July 24-27, 2013

Omni Houston Galleria Hotel

Houston, Texas

 

Read the full registration brochure and register by mail

If you or someone you love is affected by ectodermal dysplasia, it’s easy to feel confused or overwhelmed by the information available about the disorders and how it affects your body.  Or, maybe you are frustrated by the lack of information you have found.  Here is your opportunity to “Get Roped In” on an educational and life-changing journey.
 
This July, join fellow ectodermal dysplasias patients and their family members at the 2013 NFED National Family Conference in Houston, Texas. This four-day event will feature presentations from the country’s leading experts – physicians, dentists, and researchers – who will provide you with the information you need to better understand and manage your condition. It will also provide you with a wealth of support. This conference is for people of all ages who are affected by ectodermal dysplasias or care about someone who does.
 
You will:
 
• Learn you are not alone.
• Hear the latest medical and research updates.
• Share personal connections with people who care.
• Learn about useful products for people with ectodermal dysplasias.
• Exchange ideas, support, and advice.
• Surround yourself with others who understand.
• Enjoy inspiring sights, stories and experiences.
• Develop personal memories that will last a lifetime.
• Become empowered to go home and make a difference.
 

Your 2013 Family Vacation

Plan your 2013 family vacation to coincide with NFED’s 32nd Annual National Family Conference. Houston has plenty to offer its visitors with fun, family-friendly activities, great entertainment venues, and exciting nightlife. Worried about the Texas summer heat? Houston is the most air conditioned city in the U.S.!

Deadlines

Friday, April 12, 2013 - Conference Scholarship Application

Friday, May 24, 2013 - Early Registration (received by NFED)

Monday, June 24, 2013 - Registration (received by NFED) and Hotel Reservations

 

Read Susan Hamm's Welcome Letter

See Highlights from the 2012 National Family Conference

See Highlights from the 2011 National Family Conference

Read and Subscribe to Our National Family Conference Blog

 

 

"Find the Magic in You" 2012 National Family Conference

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