Information and support are important to managing ectcodermal dysplasias. Who better to share you challenges and triumphs with than a group who understands what it is really like to live with ectodermal dysplasias?
We have vital information to share with you. Our staff can listen and help you. They can also connect you with other families from your area, with your syndrome, or who have experienced similar issues.
For the private groups, we do restrict group memberships to the intended audience. Join a group today! Do you have an idea for a group you would like us to have? Let us know.