National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

We're here to help


The National Foundation for Ectodermal Dysplasias has the most comprehensive information on the ectodermal dysplasias in the world. Our goal is to provide accurate information on the 170+ syndromes and their treatment to affected families, care providers, researchers, teachers, coaches, and anyone interested in the conditions. You can download many of the publications by logging into our online community.    Publications include more than 60 articles, medical guide series, videos and more.

To order publications and awareness items online, see our Online Store.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360