National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

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The National Foundation for Ectodermal Dysplasias has the most comprehensive information on the ectodermal dysplasias in the world. Our goal is to provide accurate information on the ectodermal dysplasias and their treatment to affected families, care providers, researchers, teachers, coaches, and anyone interested in the conditions. Many of the publications can be downloaded for free at the Members Only Downloads page.  If you need a password to access this page, please fil out the Request Info form.  Publications include a newsletter, medical guide series, children’s books and more.

To order publications and awareness items on-line, see Online Store for our listings and pricing.

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