The National Foundation for Ectodermal Dysplasias has the most comprehensive information on the ectodermal dysplasias in the world. Our goal is to provide accurate information on the 170+ syndromes and their treatment to affected families, care providers, researchers, teachers, coaches, and anyone interested in the conditions. You can download many of the publications by logging into our online community. Publications include more than 60 articles, medical guide series, videos and more.
To order publications and awareness items online, see our Online Store.