National Foundation for Ectodermal Dysplasias

Our mission is to empower and connect people touched by
ectodermal dysplasias through education, support, and research.

CALL US AT (618) 566-2020

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Dental Treatment Centers

Apply to the Program

Do you or your child affected by ectodermal dysplasia need dental care? Consider one of the NFED’s Dental Treatment Centers. The Foundation has partnered with universities and private practices across the United States to provide dental care for individuals affected by ectodermal dysplasias. Our goal is to increase your access to quality and affordable oral health care. Each center’s team of providers has experience in treating the ectodermal dysplasias.

It is the patient’s responsibility to make an informed decision as to the appropriateness of care and to make suitable arrangements for payment of associated fees.

How to Apply to Participate

Contact Kayla Hollenkamp at the NFED first. Do NOT contact the center directly as you will not receive the benefits of our program if you do so. Individuals who want to participate in the Dental Treatment Center Program must do the following:

The NFED contacts all applicants upon receipt and review of their application. Approved applicants will be referred to a contact person at the appropriate center. Once approved by the NFED, applicants will be responsible for contacting the university to arrange an appointment for an intra-oral evaluation. The NFED will share the name of the approved applicants with the university staff.

Participating Dental Treatment Centers

  • Dental Specialists of Virginia (Richmond, VA)
  • Lutheran Medical Center (NEW) (Princess Anne, MD)
  • Los Angeles Dental Treatment Center (NEW)
  • Montefiore Department of Dentistry (New York)
  • Central Florida Ectodermal Dysplasia Dental Center (Orlando, FL)
  • Saint Louis University Center for Advanced Dental Education
  • San Diego Ectodermal Dysplasia Dental Center (SDEDDC)
  • Southern Illinois University School of Dental Medicine
  • The Craniofacial Center at The University of Illinois Medical Center
  • The Ohio State University College of Dentistry
  • The University of North Carolina at Chapel Hill
  • Trinity Valley Oral Surgery and Dental Implant Center (Dallas, Texas)
  • Tufts University School of Dental Medicine (Boston, MA)
  • University of Alabama at Birmingham
  • University of California, San Francisco
  • University of Colorado
  • University of Connecticut
  • University of Iowa
  • University of Kansas
  • University of Mississippi
  • University of Pennsylvania


Fees vary according to the location. All travel, lodging and meal expenses associated with treatment are the patient’s responsibility.

Questions? Email Kayla Hollenkamp at the NFED.

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The National Foundation for Ectodermal Dysplasias (NFED) is a qualified 501(c)(3) nonprofit organization.
The EIN is 37-1112496. The NFED is registered in all states where applicable.
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