National Foundation for Ectodermal Dysplasias

Upcoming Events

2010 Raffle

Do You Feel Lucky?
Make Your Own Luck by Making A Difference!

Even if you don’t feel like this is your lucky day, you have an opportunity to make it one for the NFED and the more than 5,700 individuals affected by ectodermal dysplasias that we serve. Volunteer to sell raffle tickets for the Annual Raffle in support of our families. If you are looking for an easy way to help support the NFED, this is it.

Funds raised from the Raffle support services such as education scholarships, Family Conference scholarships, Regional and National Family Conferences among so many others. The Raffle takes place during February as part of Ectodermal Dysplasias Awareness Month.

You can even be rewarded for your efforts. The family that sells the 1st place ticket will receive $100. In addition, the family that sells the most tickets will receive a $300 voucher to be used towards National Family Conference fees in 2010 or 2011.

2010 Ticket Prizes
1st Place - $1,000
2nd Place - $300
3rd Place - $200

Tickets sell for only $1 each, and the drawing will be held on March 11, 2010.

Please join our families in selling tickets during Ectodermal Dysplasias Awareness Month in February - that way, we can all be winners.

Contact Jackie at 618-566-2020 or jackie@nfed.org to request additional tickets.

Fore A Good Cause Golf Tournament
February 20, 2010

Stone Gate: Home of the Houston
National Golf Course
February 20, 2010
Registration 11:00 am Lunch 11:30‐12:30 pm
Shot Gun Start 1:00 pm
$125 per player, $500 per team

Please join the Jaundoo family for a day of golf and fun for their 1st golf tournament at the Houston National Golf Course at Stone Gate.

Download Registration information | Download Sponsorship information

In addition to the golf tournament, there will be a raffle and a silent auction. If you are unable to attend but would still like to contribute to the event in any way, be sure to contact Andre or Lori Jaundoo by email at jaundoo5@sbcglobal.net for more information or contact Carol at the office at carol@nfed.org.

Let’s Plan A Party Together!

Last year, Shana Frankel and Ruth Geismar hosted a Cinco de Mayo party as a fundraiser for the NFED, and raised more than $5,000 with minimal planning! It was a simple happy hour affair with a few fundraising twists. We have been inspired by their success and want to ask you to help us “franchise” the concept. So, we issue this challenge to all families and friends of the NFED: Plan your local, personalized version of a “Cinco de Mayo” party-- or any kind of party, as long as it is held during the week of May 5, 2010—and set a fundraising goal. Please sign up and share your ideas about hosting a successful Cinco de Mayo Fundraiser. We would like to have fundraising parties all over the United States and all over the world – spreading awareness and raising money for the NFED during the same week! Contact Carol at carol@nfed.org by March 31 to join the fun! She will give you ideas and tips on how to make it a success.

20^th Apple Classic Golf Tournament
June 18, 2010

Stonewolf Golf Club
Fairview Heights, IL
Registration - 10 a.m.
Lunch - 10:30 a.m. -11:30 a.m.
Shot gun start - 12 p.m.
Contests on the Course, Silent and Live Auction, Raffles, Mulligans, Skins

Cost: $125 per golfer
Cost includes golf and cart in four-player scramble, no handicap; skins and mulligans, lunch, dinner and refreshments and a player gift.

Sponsorships available.

For more information or to register please contact Carol at the NFED office.
Email: carol@nfed.org

5th Annual Rally for Ally

Hosted by the Kelso, Matus, George Families
June 26, 2010
Nottoway Park – Vienna, VA

Zach Hamm’s Don’t Sweat It Golf Tournament

Hosted by Paul and Susan Hamm
August 8, 2010
Gleannloch Pines Golf Club
Spring, Texas

For more information, visit their Web site.

10th Annual Halloween Bash

Hosted by the Geismar Family
Tentative Date: Thursday, October 28, 2010
New York City, New York

For more information, contact Jodi at the NFED.

Past Events