Upcoming Events
Kayla’s 5K Event to Benefit the NFED
Sunday, June 6, 2010
Starkey Park Shelter 5/Bike Trail
Race starts at 7:30 a.m. Registration - $25 before June 1.
For more information, contact Carol at the NFED.
Save the Date: Saturday, October 2, 2010
Miles & Smiles
Miles & Smiles Bicycle Ride and Rally, a cycling event in Mascoutah, IL, for the benefit of the NFED and the specialized Dental Treatment Centers at Saint Louis University Center for Advanced Dental Education and Southern Illinois University School of Dental Medicine.
• 7, 15, 30 and 60 mile routes
• Riders at all levels welcome
• Food and Fun after the Finish Line
• Sponsor Inquiries welcome – contact harry at 618-566-2020 or harry@nfed.org
• Registration opens soon
2010 Raffle Raises $32,000
And the winners are…
1st place – Diana Jarrett
2nd place – Lisa Gunn
3rd place – Dee Pinneke
Allyson Kelso won $100 for selling the first place ticket winner.
Biggest Sellers:
1st Place – The Kelso Family – 6,645 tickets
2nd prize: The Huxman Family – 3,600 tickets
3rd prize: The Johnson Family – 1,515 tickets
Each of these top sellers won a voucher to be used to attend the 2010 or 2011 National Family Conference. Thanks to everyone who sold or bought tickets or made a donation to this year’s Raffle!
20th
Apple Classic Golf Tournament
June 18, 2010
Stonewolf Golf Club
Fairview Heights, IL
Registration - 10 a.m.
Lunch - 10:30 a.m. -11:30 a.m.
Shot gun start - 12 p.m.
Contests on the Course, Silent and Live Auction, Raffles,
Mulligans, Skins
Cost: $125 per golfer
Cost includes golf and cart in four-player scramble, no
handicap, lunch, dinner and refreshments
and a player gift.
Sponsorships available.
For more information or to register
please contact Carol at the NFED office.
Email: carol@nfed.org
5th Annual Rally for Ally
Hosted by the Kelso, Matus, George Families
June 26, 2010
Nottoway Park – Vienna, VA
Zach Hamm’s Don’t Sweat It Golf Tournament
Hosted by Paul and Susan Hamm
August 8, 2010
Gleannloch Pines Golf Club
Spring, Texas
For more information, visit their Web site.
10th Annual Halloween Bash
Hosted by the Geismar Family
Thursday, October 28, 2010
Metropolitan Pavilion, North Pavilion
New York City, New York
For more information, contact Jodi (Jodi@nfed.org) at the NFED.
Past Events
Minnesota Skate Event
Families and friends joined together for the 5th straight year to raise money and awareness at the Minnesota Skate event held at St. Mary’s Point Ice Arena on Sunday, January 31. The Hubbard, Noer and Oberst families host this grand event where folks take to the ice for a day of fun to raise money for research for the NFED. This year, we were joined by the Loveridge family, the Kusnierek family and the Anderson family. An amazing $21,478.50 was raised for research. The NFED thanks all those involved with making this event a success year after year!
Jaundoo “Fore A Good Cause” Golf Classic
The Jaundoo family from Houston, Texas, hosted the 1st “Fore A Good Cause” Golf Classic on Saturday, February 20. They welcomed 12 teams to the Houston National Golf Club, and provided them with a beautiful day on the course. After play, Dr. Alanna Bree from the Scientific Advisory Council spoke to everyone about ectodermal dysplasias and the NFED during dinner. Through the efforts of the Jaundoo family and the help of their volunteers, they have raised a net total of more than $8,000, and donations are still arriving. Congratulations on a job well done!