General Information Packet

If you are interested in the ectodermal dysplasia syndromes and would like to receive a general information packet, complete the General Information Packet Form.

General Information Packet Form

The NFED will send you an information packet that contains the following materials:

• Brochure: We Are Here For You – The National Foundation for Ectodermal Dysplasias
• A Family Guide to the Ectodermal Dysplasias
• The Multi – Syndrome Guide to the Ectodermal Dysplasias
• A Publications Order Form

To order additional items, please use the Publications Order Form.

If you are an individual affected by an ectodermal dysplasia syndrome or the parent of an affected by an ectodermal dysplasia syndrome, you will need to register with the NFED in order to receive more comprehensive information than found in the General Information Packet, to be eligible for NFED services and to be on the mailing list. Register