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Welcome to the NFED! Registration is free and entitles you to receive our newsletter, e-mail announcements, and doctor referrals, and to network with other individuals in the NFED family. Please complete all areas of the form below. The NFED will contact you with helpful information and answer any questions you may have. Upon receipt of your completed form, we will send to you two extensive information packets on the ectodermal dysplasia syndromes and NFED services.

 
 
NFED Information
 Yes       No
  an individual affected by ED
  the parent of an individual affected by ED
  sibling of an individual affected by ED
  other
 
Individuals Affected By ED
  Male
 
  Female
 
  Male
 
  Female
  Ankyloblepharon-ED-Clefting AEC (Hay-Wells Syndrome)
  Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC Syndrome)
  Focal Dermal Hypoplasia (Goltz Syndrome)
  Hidrotic Ectodermal Dysplasia (Clouston Syndrome)
  Hypohidrotic Ectodermal Dysplasias (HED)
  Incontinentia Pigmenti (IP)
  Rapp-Hodgkin’s Syndrome (RHS)
  Trichorhinophalangael (TRP Syndrome I)
  Witkop’s Tooth Nail Syndrome
Other  
Unknown  
  Yes
 
  No