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If you or your child affected by ectodermal dysplasia needs dental care, whether it’s dentures or dental implants, you may want to consider one of the universities in the NFED’s Dental Treatment Center Program. The Foundation has partnered with universities across the United States to provide dental care at reduced fees for individuals affected by ectodermal dysplasia syndromes. Our goal is to increase their access to quality and affordable oral health care.

It is the patient’s responsibility to make an informed decision as to the appropriateness of care and to make suitable arrangements for payment of associated fees.

Participating Dental Treatment Centers

  • Saint Louis University Center for Advanced Dental Education
  • Southern Illinois University School of Dental Medicine
  • University of Alabama at Birmingham
  • University of Iowa
  • University of Missouri Kansas City
  • University of Pennsylvania

Fees

Fees vary according to the location. All travel, lodging and meal expenses associated with treatment are the patient’s responsibility. We encourage patients to apply to the NFED’sTreatment Assistance Program for financial assistance with fees before beginning treatment. To learn more about the Treatment Assistance Program, click here.

Application Process

Individuals who want to participate in the Dental Treatment Center Program must complete and submit to the NFED a Patient Profile, a Client Survey, a current photograph at least 2” x 3” in size, and a letter from a physician confirming the diagnosis. For complete instructions for the application process, download these documents.

Download Patient Profile

Download Client Survey

The NFED contacts all applicants upon receipt and review of their application. Approved applicants will be referred to a contact person at the appropriate university. Applicants will be responsible for contacting the university to arrange an appointment for an intra-oral evaluation. The NFED will share the name of the approved applicants with the university staff.

Questions? Email Mary Fete, Director of Research and Treatment.