Publications

The National Foundation for Ectodermal Dysplasias has the most comprehensive information on the ectodermal dysplasias in the world. Our goal is to provide accurate information on the ectodermal dysplasias and their treatment to affected families, care providers, researchers, teachers, coaches, and anyone interested in the conditions. On this Web site, you will find lots of good information. However, most of NFED’s extensive information is only available in publication form.  Publications include a newsletter, medical guide series, children’s books and more. 

To order publications on-line, see Publications Order Form for our publication list and pricing.