Publications

The National Foundation for Ectodermal Dysplasias has the most comprehensive information on the ectodermal dysplasia syndromes in the world. Our goal is to provide accurate information on the ED syndromes and their treatment to affected families, care providers, researchers, teachers, coaches, and anyone interested in ED. On this web site, you will find lots of good information on ED. However, most of NFED’s extensive information is only available in publication form.  Publications include a newsletter, medical guide series, children’s books and more. 

To order publications on-line. –See Publications Order Form for our publication list and pricing.