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By Wyatt's Mom

Wyatt was almost a year old and only had two teeth. They were sharp and pointy, but we really did not know why or if it meant anything. He had all of his regular doctor visits and everything was fine. He fell and hit his mouth on the table and we took him to a pediatric dentist. One look at him, and she said, "I think he may have ectodermal dysplasia."

She confirmed that his teeth were ok from the fall and we went home. I went online and found the NFED Web site. It pretty much confirmed it all. The pale skin, the sparse hair, the teeth.

Once we knew what we were dealing with, things became easier. The hardest thing for Wyatt I think is the lack of sweating and needing to cool down. He is the toughest kid I know and he does not like to stop playing in order to cool down. But he does it.

The NFED has helped a lot with information for the schools, his coaches, and us. He is currently in kindergarten and plays soccer in the fall and t-ball in the spring. We are going to Cape Cod this summer, and he could not be more excited. He can't wait to see the beach and pick up shells and build sandcastles. He is very resilient and empathetic and I think the trials that he has had to deal with will continue to mold him into a wonderful young man!

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