Organizing and promoting an event like this takes tremendous resources, and we can’t do it without you. You can help by becoming a Day on Capitol Hill Sponsor!

Sponsor our Advocacy Day on Capitol Hill, taking place November 3–4, 2025, when ELSA advocates from across the country will travel to Washington, D.C. to meet with federal lawmakers and share why families affected by ectodermal dysplasias and other congenital anomalies urgently need access to medically necessary care.

We are tremendously thankful for all of our ELSA supporters and humbly ask for your continued support to help our collaborative work and partner with us as costs to hold an in-person event are way beyond our budget. We have added direct sponsorship asks to help cover the costs of meals, t-shirts, advocacy training, legislative meeting scheduling, transportation from hotel to Capitol Hill, travel stipends, leave-behind materials and tote bags. The NFED has invested and continues to invest significant resources into this grassroots advocacy effort. The legislation will help many patients born with congenital anomalies when it is passed.

$250+ – Individual & Family Champions – Your name proudly listed on official Day on Capitol Hill event materials.

$1,500+ – Organizational Advocates – Your logo or name featured across our print and digital promotional materials, reaching supporters nationwide.

$5,000+ – Premier Event Sponsors – Your logo showcased on the back of every official ELSA t-shirt worn by advocates as they walk the halls of Capitol Hill. Plus, your logo or name featured across our print and digital promotional materials, reaching supporters nationwide.

*To receive full recognition and be included on the event t-shirts, sponsorship commitments and logos must be received by October 13, 2025.

Please contact Becky Abbott at becky@nfed.org if you have any questions or would like more information about sponsorships.