Now that the new 119th Congress has started, we are refreshing the Advocacy State Lead program.
Are you a current state lead or interested in becoming an advocacy state lead?
Join us on March 18th at 7pm CT / 8pm ET for a zoom webinar to learn more about the program, volunteer duties, how you can use your voice to move ELSA forward, and your role as a resource for fellow advocates in your state.
ELSA Advocates are individuals affected by ectodermal dysplasias or other congenital anomalies or their family members (parents, grandparents, siblings, etc.) who have previously participated in NFED advocacy events or have actively supported ELSA.
We seek dedicated and passionate advocates committed to advancing ELSA in the 119th Congress. Applications will be reviewed, and state leads will be selected based on various factors.