# National Foundation for Ectodermal Dysplasias

> We enrich the lives of people affected by ectodermal dysplasias\. Find resources, treatment, and people like you\.

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## Pages
- [Scientific Conferences](https://nfed.org/research/scientific-conferences/)
- [Leadership](https://nfed.org/about-us/leadership/)
- [Halloween Bash](https://nfed.org/get-involved/ways-to-give/halloween-bash/)
- [Advocacy State Leads](https://nfed.org/get-involved/advocate/advocacy-state-lead/)
- [Treatment Assistance Program](https://nfed.org/treat/treatment-assistance-program/)

## Posts
- [Row in Rhythm: Our Global Ectodermal Dysplasias Community ](https://nfed.org/blog/our-global-ectodermal-dysplasia-community/): What happens when 15 nations gather to share their stories of ectodermal dysplasia? In Copenhagen, NFED leadership found family, courage, and a surprising Viking ship lesson in rowing together\. Meet the inspiring voices who gathered for the Ectodermal Dysplasias International Network Conference and how we are shaping the global ectodermal dysplasia community\. Discover why none of us is ever truly rowing alone\! 

- [Wound Healing Conference: When Families, Doctors, and Researchers Team Up for Answers ](https://nfed.org/blog/wound-healing-conference/): Meet Lily, a brave seven\-year\-old who made new friends, colored a stuffed bear, and helped researchers at the NFED's Wound Healing Conference\. Find out how families like hers shaped new treatment guidelines, started a skin sample biobank, and showed what it looks like when science and community join hands\. 

- [We're Hiring: Director of Communications\!](https://nfed.org/blog/were-hiring-director-of-communications/)
- [The Best Kind of Medicine: Inside NFED’s 45th Anniversary Family Conference](https://nfed.org/blog/the-best-kind-of-medicine/): What happens when hundreds of people who truly understand life with ectodermal dysplasias come together? Hope grows\. Friendships begin\. Lives change\. From happy tears and inspiring stories to exciting research and unforgettable moments, see why the 2026 NFED Family Conference reminded everyone that no one walks this journey alone\. 
- [Meet Our Rising Stars and Outstanding Award Winners](https://nfed.org/blog/meet-our-rising-stars-and-outstanding-award-winners/)

## Library Resources
- [Webinar: AI and the Ectodermal Dysplasias Patient Experience](https://nfed.org/learn/library/webinar-ai-and-the-ectodermal-dysplasias-patient-experience/)
- [Ectodermal Dysplasias and Fingerprints](https://nfed.org/learn/library/ectodermal-dysplasias-and-fingerprints/)
- [What Your Child Can Tell Peers About Ectodermal Dysplasia](https://nfed.org/learn/library/what-your-child-can-tell-peers-about-ectodermal-dysplasia/)
- [Dental Providers Insurance Tool Kit](https://nfed.org/learn/library/dental-providers-insurance-tool-kit/)
- [School Advocacy Toolkit](https://nfed.org/learn/library/school-toolkit/)

## 3D FlipBook
- [2025 Impact Report](https://nfed.org/blog/3d-flip-book/2025-impact-report/)
- [2023 Impact Report](https://nfed.org/blog/3d-flip-book/2023-impact-report/)
- [2025 NFED Halloween Bash](https://nfed.org/blog/3d-flip-book/2025-nfed-halloween-bash/)
- [2024 Impact Report](https://nfed.org/blog/3d-flip-book/2024-impact-report/)

## Events
- [NYC Halloween Bash](https://nfed.org/events/nyc-halloween-bash/)
- [Mahjong Family Fundraiser](https://nfed.org/events/mahjong-family-fundraiser/)
- [Halloween Bash 2026](https://nfed.org/events/halloween-bash-2026/)
- [30th Annual Bruno's NFED Golf Outing](https://nfed.org/events/30th-brunos-golf-outing/): The Swierczewski family is hosting their 29th Bruno’s NFED Golf Outing in Blue Island, Illinois\. It’s a 4\-person golf scramble with hole contests, raffles, and live auction\. Entry fee includes breakfast, lunch, dinner and drinks\.
- [Webinar: ELSA Call\-to\-Action Week](https://nfed.org/events/webinar-elsa-summer-call-to-action/)

## Categories
- [Stories of Hope](https://nfed.org/category/stories-of-hope/)
- [News](https://nfed.org/category/news/)
- [Volunteer Spotlights](https://nfed.org/category/volunteer-spotlights/)
- [Advocacy](https://nfed.org/category/advocacy/)
- [Research](https://nfed.org/category/research/)

## Tags
- [volunteer](https://nfed.org/tag/volunteer-2/)
- [X\-linked Hypohidrotic Ectodermal dysplasia \(XLHED\)](https://nfed.org/tag/x-linked-hypohidrotic-ectodermal-dysplasia-xlhed/)
- [Ensuring Lasting Smiles Act](https://nfed.org/tag/ensuring-lasting-smiles-act/)
- [hypohidrotic ectodermal dysplasia](https://nfed.org/tag/hypohidrotic-ectodermal-dysplasia/)
- [Family Conference;](https://nfed.org/tag/family-conference/)

## Media Folders
- [Family Liaison Headshots](https://nfed.org/?taxonomy=rl_media_folder&term=family-liaison-headshots)
- [State Leads](https://nfed.org/?taxonomy=rl_media_folder&term=state-leads)

## Optional
- [Sitemap index](https://nfed.org/sitemap_index.xml)