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Research for ectodermal dysplasias is more urgent now than ever! With more than 50 known syndromes, there is still so much we don’t understand about these rare conditions. Individuals and families are waiting for answers.

And we are closer than ever to breakthroughs that could lead to life-changing treatments for the many symptoms people face every day. 

You can be the one who lights the way to make that progress possible.

Light the way to a brighter future. Illuminate ectodermal dysplasias research with your gift today.

Your donation of $25, $100, $500, $1000 or more just may be what brightens the pathway to the next life-changing discovery!

Please consider making a gift today.

With gratitude,
Mary Fete, MSN, RN, CCM
Executive Director

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