We are a part of the Ectodermal Dysplasias International Network with the following ectodermal dysplasias groups around the world. We work with their leaders to collaborate and share information. The group also works to provide information about the ectodermal dysplasias community for health care providers.
Member Organizations
Sponsors
We are grateful to these corporations and foundations for their sponsorship this year.
The Louis J. and June E. Kay Foundation
The Louis and Gladyce Foster Family Foundation
Moss Family Foundation
International Partners
Argentina – ADEA Asociacion Displasia Ectodermica Argentina
Australia – Australian Ectodermal Dysplasia Support Group (ozED)
Brazil – Displasia Ectodérmica Brasil
Canada – Canadian Ectodermal Dysplasia Syndromes Association (CEDSA)
Denmark – Ectodermal Dysplasia Dk
France – Association Francaise Dysplasies Ectodermiques (AFDE)
Germany/Austria/Switzerland – Selbsthilfegruppe Ektodermale Dysplasie e.V.
Ireland – Ectodermal Dysplasia Society
Italy – Associazione Nazionale Displasia Ectodermica (ANDE)
Mexico – Asociacion Mexicana de Displasia Ectodermica Mariana, A.C (AMDEM)
Netherlands/Belgium/Luxemburg – Ectodermal Dysplasia the Netherlands
Russia – Ectodermal Dysplasia Russia
Spain – Asociacion de Afectados por Displasia Ectodermica (AADE)
Sweden – Svenska Ed-föreningen
Turkey – Ectodermal Dysplasia Group Turkey
United Kingdom – ED Society UK
ADVOCACY SUPPORTERS
In addition to our partners and sponsors, we are proud to advocate for the Ensuring Lasting Smiles Act (ELSA) alongside dozens of organizations who believe in helping families affected by all congenital anomalies.
See ELSA Supporters