We are a part of the Ectodermal Dysplasias International Network with the following ectodermal dysplasias groups around the world. We work with their leaders to collaborate and share information. The group also works to provide information about the ectodermal dysplasias community for health care providers.


International Partners

Media Partner


We are grateful to these corporations and foundations for their sponsorship this year.

Oracle Logo

The Louis J. and June E. Kay Foundation

The Louis and Gladyce Foster Family Foundation



In addition to our partners and sponsors, we are proud to advocate for the Ensuring Lasting Smiles Act (ELSA) alongside dozens of organizations who believe in helping families affected by all congenital anomalies.

See ELSA Supporters