Our Staff

Mary Fete, MSN, R.N., CCM

Executive Director
2002 – present

Mary is our fearless leader who brings two decades of nursing and case management experience and her passion to make a difference. She oversees everything we do. She leads our Research Program and finds investigators willing to study the conditions. She also searches for new ways to make dental care affordable and accessible for families. She’s the energetic force who charts the NFED’s future and leads with her heart in all that she does.

Becky Abbott, MPH

Director, Treatment and Research Advocacy
2019 – present

Becky helps families affected by ectodermal dysplasias access the dental treatment they need. She can talk you through the process of finding a care provider and how to fund that care. She can also help you understand the insurance process and how to apply for financial assistance from the NFED and for free dental implants. Becky manages the Dental  Treatment Centers. She also strives to expand our research program and coordinates logistics for research projects.

Kelley Atchison

Kelley Atchison

Director, Family and Community Programs
2001 – present

Kelley spends her time talking to people affected by ectodermal dysplasias and their families. She welcomes new families, lends a listening ear, celebrates their accomplishments and shares in their frustrations. Kelley provides support to families for what they need. She connects them to other families, doctors, dentists and resources. She also plans our largest event that brings families, doctors and researchers together every year, the Family Conference. If you need help in advocating in schools or working through the insurance appeals process, Kelley is your gal.

Jodi Edgar Reinhardt

Jodi Edgar Reinhardt

Communications Specialist
1994 – present

Jodi has dedicated 29 years to the NFED family and has served in various roles. Now, she is the Communications Specialist who tells amazing stories, raises awareness and educates others about the ectodermal dysplasias. She writes content and blogs, gives presentations and helps the marketing and communications team with whatever tasks needed.

Kayla Hollenkamp

Kayla Hollenkamp

Administrative Assistant
2015 – present

Kayla is our staffer who helps in lots of areas. She is our executive director’s right hand, tending to the details of the research and treatment programs. She plans logistics for meetings of the staff, Board and Councils and makes sure the office has supplies and working computers and copiers. Kayla spends a lot of time in our database, keeping our records up-to-date and providing staff with queries and reports. She selects and orders our inventory of cool NFED gear and items.

Lea Richardson

Lea Richardson

Manager, Community Engagement
2011 – present

Lea manages and recruits volunteers to help our staff in all areas of operations. She promotes opportunities, trains them on their tasks, and connects and supports them. Lea finds creative ways to recognize them for their time and efforts. She works with families to plan and execute their fundraisers. She also processes donations and assists with bookkeeping.  Lea is from The Netherlands and enjoys building relationships with families. She can speak several languages, which is helpful when translating communications for us.

A loving and caring group of awesome people. Thank you for everything that you all do everyday. – Anthony

Board of Directors

Karl Nelsen, PA-C, M.S.

Anil Vora
Vice President

Marianne Vermeer

Keith Throm

Krista C. Basile

Jack Kriz

Roy Moffitt

Charles Richter

Richard Stratz

J. Timothy Wright, DDS, M.S.

Ad Hoc Advisor
Ruth Geismar

Patient Care Council

Julie Claeys
NFED Family Member

Timothy J. Fete, Sr., M.D., MPH
Professor Emeritus, University of Missouri School of Medicine

Lonnie Johnson, DDS, Ph.D.
University of Colorado-Anschutz Campus
School of Dental Medicine

Lisa Knobloch, DDS, M.S.
The Ohio State University
College of Dentistry

Jonathan Korostoff, DMD, Ph.D.
University of Pennsylvania School of Dental Medicine

Beau D. Meyer, DDS, MPH
The Ohio State University

Scientific Advisory Council


Clark Stanford, DDS, Ph.D., MHA
University of Iowa College of Dentistry and Dental Clinics


Timothy J. Fete, Sr., M.D., MPH.
Professor Emeritus, University of Missouri School of Medicine

Liaison from the Board of Directors

J. Timothy Wright, DDS, M.S.
University of North Carolina Chapel Hill


Lauren Blieden, M.D.
Cullen Eye Institute

Clayton Butcher, M.D.
University of Missouri Internal Medicine and Pediatrics – Woodrail

Cynthia Marie Carver DeKlotz, M.D.
Janssen Research & Development – Immunology

Dorothy Katherine Grange, M.D.
Saint Louis Children’s Hospital

Brandon Hopkins, M.D.
Cleveland Clinic Head and Neck Institute

Maranke I. Koster, Ph.D.
East Carolina University

Richard A. Lewis, M.D., M.S.
Baylor College of Medicine

Pilar L. Magoulas, M.S., CGC
Baylor College of Medicine

Patricia Marik, Psy.D., M.A.
Medical College of Wisconsin

Anubhav Mathur, M.D., Ph.D.
University of California – San Francisco

Beau D. Meyer, DDS, MPH
The Ohio State University

Kathleen Motil, M.D., Ph.D.
Baylor College of Medicine

Elaine C. Siegfried, M.D.
Saint Louis University School of Medicine

Raj Sindwani, M.D., FACS, FRCS
Cleveland Clinic, Head and Neck Institute

Ad Hoc Members
Karl Nelsen, PA-C, M.S.
NFED Family Member

Anil Vora
NFED Family Member