We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Aug 20, 2026
8:00 pm
to
9:00 pm
Join us for a webinar on August 20th at 8 p.m. Eastern / 7 p.m. Central to discover how you can power the ELSA Summer Call-to-Action campaign to pass the Ensuring Lasting Smiles Act (ELSA), which is vital legislation that requires health insurance coverage for medically necessary treatment for individuals born with congenital craniofacial anomalies….
Date: Sep 15, 2026
8:00 pm
to
8:45 pm
If you or someone you love lives with an ectodermal dysplasia, chances are you have already turned to AI for answers. Whether it is searching for a diagnosis, understanding a treatment option, or simply looking for someone who understands what you are going through, AI tools are reshaping how our community finds information and advocates…
