We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
The NFED Miles for Smiles Challenge is a month-long movement: walk, run, swim, bike, skate, ski, or treadmill your way toward a future where every family affected by ectodermal dysplasias.
Find Hope, Answers, and Each Other July 23 – 25, 2026 *Registration for 2026 Family Conference is now officially closed due to capacity limit. There is something life-changing about walking into a room where everyone “gets it.” We invite you to join us for three unforgettable days of connection and building lifelong friendships with people…