We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Sep 30, 2024
4:30 pm
to
8:30 pm
A sparkling evening of family fun to benefit the National Foundation for Ectodermal Dysplasias (NFED) community. Join us for a Farm-to-Table Dinner, live music, silent auction and more to support parents and children living with the many challenges of ectodermal dysplasia. Your support is so important and so impactful. We hope to see you there!…
Date: Oct 19, 2024
9:00 am
to
2:00 pm
Join the Pearson Family for a fun-filled, family-friendly dodgeball tournament at Funcity Courts in Burlington, Iowa! Registration Details
Date: Oct 27, 2024
9:00 am
The Pagano family, Red Dragon and Lion Force Martial Arts are hosting a family fun day with a 5K non-competitive run/walk in Media, Pennsylvania to benefit the National Foundation for Ectodermal Dysplasias. Join the fun for a good cause in honor of Jayden. There will be a silent auction and some raffles. For more information…
Date: Feb 20, 2025 to
Feb 22, 2025
12:00 am
Translating Discovery to Therapy The National Foundation for Ectodermal Dysplasias is sponsoring this scientific conference in Charlotte, North Carolina to improve the diagnosis, management and therapy development for incontinentia pigmenti.
Date: Jul 10, 2025 to
Jul 12, 2025
12:00 am
Join us for our annual Family Conference in Minneapolis, Minnesota! DoubleTree by Hilton Bloomington – Minneapolis South Stay tuned for more information, agenda and registration details. Until then, mark your calendars!
