We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

2026 NFED Family Conference

Date: Jul 23, 2026 to Jul 25, 2026
12:00 am

Find Hope, Answers, and Each Other July 23 – 25, 2026 There is something life-changing about walking into a room where everyone “gets it.” We invite you to join us for three unforgettable days of connection and building lifelong friendships with people affected by ectodermal dysplasias and their families. This isn’t just a conference. It’s…