We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Sep 24, 2026 to
Sep 25, 2026
12:00 am
Chicago, Illinois The NFED is bringing together researchers, doctors and individuals affected by ADULT syndrome; ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome; ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome; and limb-mammary syndrome. Our goal is to create a treatment protocol for the skin erosions or wounds people with these syndromes experience.
Date: Sep 10, 2026 to
Oct 31, 2026
12:00 am
Join the 2026 Halloween Bash, hosted by the Geismar family! Mark your calendars for October 20–31, 2026 and join us for our spooktacular 26th Anniversary Halloween Bash! This celebration features an online auction, an in person party in NYC on October 24th, and plenty of frightfully fun ways to make a difference for families affected…
Date: Nov 14, 2026
9:00 am
Mahjong Tournament to benefit the NFED! Where: Cornerstone Restaurant & Bar 301 Freeport Rd, Aspinwall, PA 15215 Hours of mahjong gameplay for a cause will kick off at 9 a.m, with proceeds benefitting the NFED. There will be food and drinks available.
