We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Translating Discovery to Therapy The National Foundation for Ectodermal Dysplasias is sponsoring this scientific conference in Charlotte, North Carolina to improve the diagnosis, management and therapy development for incontinentia pigmenti.
Join Us for the NFED Family Conference! July 10-12, 2025 Registration Now Open! The National Foundation for Ectodermal Dysplasias (NFED) Family Conference brings together people affected by ectodermal dysplasias and their families. Join us for three days of learning, support, and fun! Connect with others, build friendships and share experiences. Meet medical and dental experts,…