We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Aug 1, 2026 to
Sep 4, 2026
12:00 am
to
11:59 pm
Purchase your fall plants or house plants from Nu Tau Chapter of Delta Theta Tau Sorority, and 100% of the proceeds will benefit the National Foundation for Ectodermal Dysplasias (NFED). Orders accepted through September 4, 2026. Pick-up at University Heights United Methodist Church, or delivery can be arranged by emailing dttnutau@gmail.com in advance of placing an…
Date: Sep 15, 2026
8:00 pm
to
8:45 pm
If you or someone you love lives with an ectodermal dysplasia, chances are you have already turned to AI for answers. Whether it is searching for a diagnosis, understanding a treatment option, or simply looking for someone who understands what you are going through, AI tools are reshaping how our community finds information and advocates…
Date: Sep 24, 2026 to
Sep 25, 2026
12:00 am
Chicago, Illinois The NFED is bringing together researchers, doctors and individuals affected by ADULT syndrome; ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) syndrome; ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome; and limb-mammary syndrome. Our goal is to create a treatment protocol for the skin erosions or wounds people with these syndromes experience.