We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Jul 10, 2025 to
Jul 12, 2025
12:00 am
Join Us for the NFED Family Conference! July 10-12, 2025 The National Foundation for Ectodermal Dysplasias (NFED) Family Conference brings together people affected by ectodermal dysplasias and their families. Join us for three days of learning, support, and fun! Connect with others, build friendships and share experiences. Meet medical and dental experts, ask questions, and…
Date: Jul 16, 2025
12:00 am
Take collective action with us on Tuesday, July 16 for a virtual Day of Action to advocate for the Ensuring Lasting Smiles Act (ELSA)! This is a big moment. Together, we can make sure ELSA stays front and center in the 119th United States Congress and moves forward. But it won’t happen without your voice….
Date: Sep 20, 2025
2:00 pm
Join the Reidenouer & Vecchini families on September 20, 2025 in Lockport, NY, for a BBQ fundraiser honoring Nikko Vecchini and supporting the NFED. Enjoy food, raffles (including a Harley quilt & big screen TV!), and live music by Dave & Jack Thurman. A $10 donation per person is suggested.
