We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Bike Ride to the Capitol 2024

Date: Jun 30, 2024 to Jul 5, 2024
12:00 am

Delany and Jack Kriz (affected by EEC syndrome) are training (in Oregon) to cycle the Great Allegheny Passage and The Chesapeake and Ohio Canal Towpath from Pittsburgh to Washington D.C., 335.4 miles in 6 days June 30 to July 5, 2024. Our end goal is to be in D.C. in time to join the NFED’s Stand…

Stand Together NFED Advocacy Conference 2024

Date: Jul 7, 2024 to Jul 9, 2024
12:00 am

Be Part of Something Truly Special at NFED’s Stand Together Advocacy Conference Don’t let this opportunity pass you by! Join us in standing together and making a difference for those living with ectodermal dysplasia and other congenital anomalies. It’s not just a conference; it’s a reunion with old friends and a warm welcome to newcomers,…

Night Under the Stars 2024

Date: Sep 30, 2024
4:30 pm to 8:30 pm

A sparkling evening of family fun to benefit the National Foundation for Ectodermal Dysplasias (NFED) community. Join us for a Farm-to-Table Dinner, live music, silent auction and more to support parents and children living with the many challenges of ectodermal dysplasia. Your support is so important and so impactful. We hope to see you there!…