Nobody expects their child to be born with a rare genetic disorder. It can be challenging, frustrating and overwhelming.  The NFED exists to assure families they are not alone. With our help, families affected by ectodermal dysplasias are empowered to live their best life. We need your help to make this possible.

Ready to stand up and raise your helping hands?

Becoming one of NFED’s Helping Hands is an investment of time, energy and heart.

To volunteer, please complete this form!