With the support of contributors like you, we can continue to educate people about these rare conditions, support those affected, and advance research for better treatments. You have many ways to make a gift to support the vital work we do at the National Foundation for Ectodermal Dysplasias (NFED).
Without this (NFED Facebook) page, their staff and organization in general we would still be flailing on how to manage Jameson’s disease. Please check their page frequently and donate to a wonderful cause. – Sheila
Cash Gifts
You have three easy ways to give a cash gift to support the NFED:
- Online Donation: Visit our donate page to make a secure online donation.
- Phone Donation: Call us at 618-566-2020 to make a gift over the phone using your credit card.
- Mail Donation: Send a check or money order to: NFED 6 Executive Dr., Ste. 2, Fairview Heights, IL 62208-1360
The Smile Makers Monthly Giving Program
Become a Smile Maker by supporting the NFED with a recurring monthly donation. This program makes donating simple and allows you to contribute in a more significant way.
Matching Gifts
Double Your Donation! Many companies offer matching gift programs to encourage employee contributions. Check with your employer to see if they will match your donation!
Planned Gifts
A planned gift through a bequest, insurance contribution, retirement asset, annuity, donor-advised or irrevocable/revocable trust can provide financial and tax benefits while impacting NFED programming for years to come.
Donor-Advised Funds (DAFs)
A Donor-Advised Fund (DAF) is a charitable giving account managed by a public charity, often called the sponsoring organization. It allows you to make contributions to the account and later recommend grants to nonprofits of your choice over time. If you have a DAF, you can recommend grants to the NFED. Please consult your financial advisor for guidance.
Important Information:
- NFED Address: 6 Executive Drive Ste. 2, Fairview Heights, IL 62208-1360
- Tax ID: 37-1112496
To ensure proper acknowledgment of your gift, please email Isabella to inform us of your DAF contribution.
Thrivent Choice®
We’re proud to be a Thrivent Choice®-enrolled organization. Are you a Thrivent member? You can support families affected by ectodermal dysplasias through Thrivent Choice®. Through the Thrivent programs, we are eligible to receive grant dollars, fee-free donations, and support from Thrivent Action Team service projects. For more information, visit thrivent.com/generosity.
Non-Cash Gifts
You can also give non-cash gifts such as stocks, securities, real estate, or other gifts in kind. Because non-cash gifts require additional paperwork, review and approvals, we encourage donors to contact their financial advisors and Isabella at the NFED when considering a non-cash contribution.
In-Kind Donations Needed:
- Supplies for Kays’ Kids and Teens Camps
- Office supplies
- Giveaway items for NFED families
- Air conditioners and cooling vests
- Free dental and medical evaluations
Honorary or Memorial Gifts
Commemorate a special occasion or honor a loved one with a gift that supports the ectodermal dysplasias community. You can make honorary or memorial gifts anytime by mail, online, or by phone. Please indicate who the gift honors or memorializes, and if you’d like us to notify the family.
Support the NFED Through Your Workplace
Payroll Deduction Giving: This convenient method allows you to donate a small amount with each paycheck, making a big difference over time. Contact your HR department to start your contribution. Donations are deducted automatically. It’s easy, efficient and affordable!
“This organization (represents) something that thousands of people work through every day. It’s near and dear to my entire family’s hearts. This year, I chose this organization to donate through my payroll deduction.” – Jennifer
United Way
While the NFED is not an official United Way agency, you can check your United Way campaign to see if you can write in the NFED as an alternate choice, using EIN #37-1112496. If you choose this option, please contact Isabella to ensure we track your gift.
Fundraising
We provide toolkits and ideas to help you fundraise for the NFED. Let us assist you in planning a fundraising event or activity that suits you!
Other Ways to Give
There are many meaningful ways to support the NFED beyond a traditional donation.
RoundUp Giving
Through RoundUp App, supporters can donate spare change from everyday purchases. Transactions are rounded up to the nearest dollar, and the difference is donated to support NFED programs.
Shop and Give
Some online shopping platforms allow a portion of your purchase to be donated to nonprofit organizations. By shopping through participating platforms and retailers, everyday purchases can help support the NFED at no additional cost to you.
Credit Card Rewards
Many credit card companies allow cardholders to donate their cash back or rewards points directly through their issuer portals. Donating rewards is a simple way to turn everyday spending into support for the NFED. Questions? Reach out to your credit card issuer for more details.
Give Your Time
Volunteering is another powerful way to support the NFED. Whether helping with events, sharing professional skills, or supporting community initiatives, volunteers play a vital role in advancing our mission.