The NFED couldn’t do our work without caring doctors and dentists who share their time and expertise. We’re excited to welcome five new care providers to our councils. Their knowledge helps direct our research, shape our programs, strengthen our education, and support families affected by ectodermal dysplasias every day. Meet our new Council members!
Growing Up With Spray Bottles, Dentures, and Determination
Growing up with ectodermal dysplasia shaped my life in big and small ways—from fan-spray bottles on the playground to navigating dentures and surgeries. With unwavering support from my parents, I learned resilience, confidence, and how to live fully despite challenges. This is my story of strength, humor, and perseverance.
7 Reasons Why Youths Should Advocate for ELSA
Kids and teens have powerful voices and they can help change lives. Learn why speaking up for the Ensuring Lasting Smiles Act matters, how it affects real families, and how young advocates can make a big difference.
Putting People First: NFED’s New Executive Director Shares His Vision
We recently sat down with Greg Klimovitz, our new executive director as of October 2025, to learn what drew him to the Foundation, his vision, and how he hopes to build on the NFED’s success. In this Q&A, Greg talks honestly about why community is at the heart of everything we do. What are you…
The Tiny Dog with Ectodermal Dysplasia Who’s Stealing Hearts
Meet Piglet, a tiny dog with ectodermal dysplasia whose story will warm your heart. From fragile puppy to playful Instagram star, Piglet shows that even the smallest pups can overcome big challenges. Learn how she lives, plays, and inspires awareness for this rare genetic condition in dogs and humans.
From My Heart to Yours: Reflections as I Step Into Retirement
As Mary Fete prepares to retire, she looks back on an amazing journey with the NFED community. From nervous first days to unforgettable Family Conferences, she says she’s been inspired, challenged, and blessed. Join her in celebrating the people, moments, and progress that made her experience unforgettable.
Honoring Mary Fete’s Legacy of Love and Impact
Mary Fete is retiring after years of leading the NFED with heart, courage, and big ideas. She helped grow research, support families and strengthen programs. Read how her hard work and kindness shaped the NFED and why her legacy will guide our community for years to come.
Celebrating 25 Years of the Halloween Bash Community
Celebrate 25 years of the Halloween Bash with us! This amazing event started as a party and grew into a huge community of families and friends helping the NFED. Come learn how it sparked big changes, supported research and brought people together. Read how this fun event made a huge difference for people affected by ectodermal dysplasias.