Halloween Bash

Dear NFED Family and Friends,

Keith and I, along with Bruce and Alice, and our loving team THANK YOU for your continued support. We truly appreciate you taking the time to visit this page.

The NFED is an organization that is so important to our family. They were there for us when Ryan was born, and they are there for us now. 

We are so proud of our son and of you. Look at what we have achieved with your help! Since our first Bash, we have raised over $4.8 million dollars for the NFED, which is incredible! This year, our goal is to raise another $125,000.

As always, we’re grateful for your support. Without your kindness and generosity, we would not be able to continue helping individuals and families affected by ectodermal dysplasias, a rare and often overlooked set of syndromes that desperately require additional and improved treatment options.

Please make a donation to our 2026 Halloween Bash today. All funds raised help the NFED support vital work for our families, like medical conferences, research, advocacy for fair insurance coverage, and need-based support for affected individuals and families.

This event is all online and includes an auction, journal, and opportunity to donate. And if you want to celebrate in person with us in New York City, we’d love to see you on October 24th. Tickets will be available October 1! 

We are also looking for silent auction items and sponsors for this year’s Halloween Bash. Will you or your employer be able to help? If so, please visit this link to submit your item, or reach out to info@nfed.org Let’s work together for all affected families!

Event Committee Co-Chairs

Event Committee Members

Donations to the NFED are eligible for tax deductions to the limit allowable by the law. We are a 501c3 nonprofit organization. Our tax identification number is 37-1112496.

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