We empower and connect those touched by ectodermal dysplasias through education, support and research.

Families affected by ectodermal dysplasias and other congenital anomalies often have trouble paying for medically necessary treatments that are not covered by insurance companies. We need your help to close a loophole in the law that allows insurance companies to deny necessary medical and dental procedures to those affected by congenital anomalies like ectodermal dysplasias. Our advocacy tool makes it easy to reach out to your legislators and affect change.
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