Date: August 4, 2025 - August 29, 2025
Time: 9:00 am
to
11:00 pm
Research for ectodermal dysplasias is more urgent now than ever! With more than 50 known syndromes, there is still so much we don’t understand. Individuals and families are waiting for answers.
And we are closer than ever to breakthroughs that could lead to life-changing treatments for the many symptoms people face every day.
Light the way to a brighter future by donating to our 2025 research appeal campaign. Illuminate ectodermal dysplasias research with your gift today.