2026 Family Conference Registration

2026 Family Conference Registration

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Are you applying for a Family Conference scholarship?

Yes

I/We are applying for (Check all that apply)*

Registration Fees

Lodging

Deadline: Friday, February 27, 2026

Family Conference Scholarship funds are limited and are intended for families whose income level is less than $75,000. Each application will be ranked according to prior Family Conference attendance, Organization Involvement, and a brief statement on why you want to attend the Family Conference.

Is this your first conference?*

Yes

How many conference have you attended?*

Please list any involvement with the NFED.*

For example: Participating in an event/fundraiser, Awareness Month, or serving on a committee.

Why do you want to attend and how would your family benefit from attending the conference?*

Please list circumstances that would prevent you from attending the conference if you are not awarded a scholarship.*

The NFED operates 100% on private financial contributions. Our donors want to know the impact their gifts make on the work we do for our families. The best way to show our impact is to share stories from those that we’ve helped. As a recipient of this scholarship, your story could help us increase the amount of money raised. We need you to write two to three paragraphs about your scholarship experience. You may choose to have your name published or remain anonymous. Please share your story here.

Registration Information

Registration Prices:
Early Registration by April 28, 2026
Adults (18 and older) $200
Children (birth-17) $125 each.

How many adults (18 and older) will be attending?*

How many children (birth – 17) will be attending?*

Total Number of Attendees

Address*

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Phone Number*

Phone Type*

Email Address*

Please indicate the type of ectodermal dysplasia that affects your family.*

Please specify type of ectodermal dysplasia*

Are you a registered member of the NFED?*

Yes

Unsure

Attendees

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

We do our best to accommodate all food allergies; however, there may be instances where it’s not possible to guarantee complete allergen-free preparation due to the nature of the kitchen environment. There will always be some options available to meet requests. All meals are served buffet style.

Please specify allergy*

Do you need any specific accommodations to ensure that you’re able to fully participate in the conference? If yes, please tell us more. (This could include anything related to wheelchair, deaf or hard of hearing, vision accessibility, or other considerations)*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Name*

First Last

Preferred Name (if different than above)

Pronouns*

Preferred pronouns*

Self-Identification*

Please specify*

Date of Birth*

This field is hidden when viewing the form

Age*

Mobile Number

Email Address

Affected by Ectodermal Dysplasia

T-Shirt Size*

Will be attending Kays' Kids Camp or Teens Program (determined by age)*

Kays’ Kids Camp and Teens Program is for children affected by ectodermal dysplasia and their siblings.

Yes

If applicable, grade level for the 2026-27 school year?

Needs dental evaluation*

Yes

Dietary Restrictions (Check all that apply)*

Please specify allergy*

Yes (please specify below)

Please specify the accommodations or considerations needed*

I would be interested in…

Volunteering at the event

Being a speaker or panelist

Adult Registrants*

Price: $215.00

Registration Subtotal

Coupon

Child Registrants*

Price: $0.00

Thanks for applying for a scholarship to attend the Family Conference. We do not need any billing information at this time. After submitting the application, we will notify you on March 31, 2026 via email about whether or not your application was approved.

Payment Method

Credit Card*

American Express

Discover

MasterCard

Visa

Card Number

Expiration Date

Security Code Cardholder Name

Billing Address*

Use previous address

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

I’d like to help by covering the 3% credit card processing fee

Credit Card Processing Fee*

Price: $0.00

Registration Total