Join us as we take a stroll down memory lane and explore some of our major accomplishments over the past 45 years.
The House passes the Ensuring Lasting Smiles Act with 310 votes. But, ELSA failed to make it to a vote in the U.S. Senate in that session of Congress.
Forty international experts participate in the NFED’s third scientific conference dedicated to Complex Wounds in Ectodermal Dysplasias.
The NFED convened its first Incontinentia Pigmenti Conference: Translating Discovery to Therapy, to update eye treatment protocols and deepen understanding.
Greg succeeds Mary Fete, M.S.N., R.N., C.C.M. who retired as executive director.
To date, the Halloween Bash has raised $4.8 million which enabled NFED to expand all of its programming.