This special milestone event honors our incredible journey together. We will reflect on the breakthroughs we’ve achieved as a community and look ahead to the exciting future of ectodermal dysplasias care and research.
And yes… we’re taking it way back with an ’80s–themed celebration!
Get ready to rock those bold patterns, neon colors, and parachute pants. Whether you’re going “totally ’80s” or just coming as you are, we can’t wait to celebrate four decades of impact with you!
Event Details
- When: Thursday, July 23, 2026 6 p.m. – 9 p.m.
- Location: DoubleTree by Hilton Chesterfield, Missouri in Ballroom A-D
- Dinner: A plated entrée will be served. Please make your selection during registration.
- Option 1: Chicken Entrée
- Option 2: Vegetarian Entrée
Accommodations & Lodging
Planning to stay overnight? A dedicated room block has been reserved for our attendees. Our group rate is $159 per night plus taxes and fees. To secure the group rate, you must make your reservation by Friday, June 26.
Booking within the official hotel block helps us keep registration fees affordable, secure meeting space, and continue offering high-quality programming and events for our community.
By booking your stay directly through our link (instead of a third-party site), you will also have greater flexibility to modify your reservation directly with the hotel.
Important: Rooms and certain bed types are limited and available on a first-come, first-served basis. We strongly encourage attendees to reserve early to take advantage of these exclusive benefits.
We must receive your confirmation no later than June 30 to allow sufficient time to submit meal selections to the venue.