The National Foundation for Ectodermal Dysplasias welcomes a new staff member with 20 years of experience with ectodermal dysplasia. Kristin Matus-Kelso will serve as the Family and Community Programs Coordinator. This is a new position created to enhance our capacity to help our growing community.
While new to the staff, she’s not new to the NFED. Kristin has been a member since her daughter, Ally, was born in 2004. Ally is affected by ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. She and her family engaged quickly with the Foundation, becoming regulars at Family Conference.
Strategic Decision to Expand Staff
NFED Executive Director Mary Fete said she’s excited about expanding the staff.
“With leadership from the Board of Directors, we made the strategic decision to invest in additional staff this year. This will help grow our mission and better serve our NFED family. On average, we have 35 new families join every month. We need the additional staff support. We’re also looking forward to expanding our programs and resources so we can offer even more support to our community. I’m thrilled to have Kristin on our team to help coordinate family programs.”
Kristin will work closely with Kelley Atchison, Director of Family and Community Programs
“I am excited to work with Kristin as a colleague and not just as a volunteer,” Kelley said. “Kristin has served as a past Family Conference chair, Family Liaison, and Family Liaison chair for many years. She has been one of the many family volunteers that I have turned to through the years to bounce off ideas or to have a Family Conference brainstorming session. She has a beautiful heart and connects so well with anyone she speaks to.”
Joining the NFED Is a Dream Come True
Kristin’s talent, innovative thinking and attention to detail make her an ideal candidate in the new role. She understands the culture of the NFED given her personal experience with ectodermal dysplasia and is always an advocate for all affected families.
“Joining the NFED staff is truly a dream come true!” Kristin said. “With a deep passion for supporting others, I’m dedicated to building meaningful relationships with families and individuals affected by ectodermal dysplasias and connecting them with the resources they need.
“As the parent of an affected young adult, I have a firsthand understanding of the unique challenges that families and caregivers face throughout the various stages of life. From childhood to adolescence and early adulthood, I recognize that a ‘one size fits all’ approach to managing ectodermal dysplasia doesn’t always work. By listening to your stories and hearing your struggles, I hope to use my personal experiences and professional knowledge to be an asset to the NFED team. I plan to build on our existing programs and help develop new ways to engage and support you while continuing to establish a sense of community among our members.”
Join us in welcoming Kristin to the NFED staff by leaving her a comment below!