We will be hosting an informational webinar, including a question and answer session, on Tuesday, April 25 at 7:30 p.m. CDT, for those interested in the EDELIFE clinical trial. The trial is studying a potential treatment for XLHED-affected boys.

Presenters will include:

  • Dr. Kathy Grange, a member of our Scientific Advisory Council and the principal investigator for the U.S. trial site at Washington University in St. Louis, Missouri.
  • Mary Fete, executive director for the NFED.
  • Families who have participated in past studies, whose baby boys were previously given the potential treatment in utero.

Be prepared to learn about genetic inheritance patterns, who can participate and what to expect if participating in the study. Be sure to bring your questions for this casual—yet informational—conversation. Registration will close at 5 p.m. CDT, the day of the webinar, April 25. Register below to join us!

Registration for the EDELIFE Clinical Trial Informational Webinar is now closed. Please contact Veronica, at veronica@nfed.org with questions.